Posted tagged ‘Musculoskeletal Disorders’

Fatigue

May 14, 2012

I am so fatigued today I can barely think.  Fatigue is ever-present in patients with fibromyalgia.  I have spent many days in bed, on the couch, frequent naps, etc.  When my boys were younger they used to call the couch Mama’s charger (like a phone charger).  I preferred to rest on the couch so I could be with them and they got used to me being on “my charger” frequently to get some energy back.  Fibro patients get pretty good at fooling others concerning hiding fatigue and pain.  Sometimes I just HAVE to go to bed and get rest, but normally I try to take frequent rests in a lounge chair, on the couch, etc.  I find that I do better if I try to push myself a little rather than just staying in bed.  I am in CONSTANT pain and never get a break from it.  My Rheumatologist told me a few years ago that it appeared that I had Severe Fibromyalgia and that I would probably continue to have substantial pain and fatigue.  He also said that I would get to where I could tolerate the pain better and I thought he was simply crazy!  I reminded him about 6 months ago what he told me and that at the time I thought he was crazy, because how could anyone tolerate so much pain….. but I do.

The other day I went out to lunch with a good friend and we stopped by a store to pick up some flowers.  After a few minutes I told her that I had to go home because I was starting to crash.  She knew I was tired by that time and asked if I was in pain.  I told her that I am always in pain and yes the pain was getting to be too much and I needed to go home.  She had no idea that I had been hurting the entire time at lunch and the few minutes at the store.  I mentioned earlier that I was “starting to crash”.  What I mean by this is my fatigue is getting too great and I am going to have to lay down very soon.  I don’t do much shopping and I have been out before by myself and had to call my Mother-in-law to come and get me.  We leave my car there while she takes me home and my husband and boys go back later to pick up my car.  Once I was at a local grocery store for a few items and I got to the check-out and realized that I was about to crash.  Luckily one of our sons worked at the grocery store at the time and I asked the manager if my son could take me home since I didn’t feel well and we lived close.  He very kindly let my son take me home and unload my groceries while I went to bed.  W-E-L-L   ……. I am about to crash now so I need to stop for the day and go get some rest.

I wish for you and low pain day and extra energy!

Fibromyalgia Awareness Day 2012

May 12, 2012

Today is Fibromyalgia Awareness Day 2012 – wear purple in support.  This is not something that I am excited to do, looking forward to, wanting to do all of my life….. but it is a day to say I AM ONE OF MANY THAT HAVE FIBROMYALGIA AND WE NEED A CURE!  Fibro not only takes over your life, but it takes over the lives of your family and close friends.  It is something that has been difficult for me and my doctors to help me get much relief from the pain, fatigue, and many other symptoms.  It took from me precious time with my family, it took my career, it took half of our family’s income, it took my health, it took my total independence, it took a lot of my happiness at times….. but it is not who I am, it is an illness that I have and I try each day to take back more of my own life.  I am spending today with my husband and 3 boys and I intend to enjoy the entire day and try to live life to the fullest!!

I wish for you today a low pain day and extra energy! 

My Fibromyalgia Story updated due to FIBRO FOG

May 11, 2012

Well, this morning I was rereading my blog from yesterday and realized I had left out some KEY people in helping over the years as I have struggled in living with Severe Fibromyalgia.  This is due to Fibro Fog that clouds my mind and doesn’t let the necessary connections be made so I can think clearly, be able to complete sentences when I am talking, or remember even half of my past.  I will do a blog soon on Fibro Fog and talk indepth about it.

My mother-in-law, Nina, has helped with everything from activities with the boys or anything they wanted to do (including playing baseball with her in the backyard), cleaning my house, cooking us meals, etc.  She lives only a minute away and has been here in a minutes notice when I have needed her.  She helped us raise the boys when I was still able to work, she took them to spend the night with her on Friday nights to give me and my husband some quiet time, she has been a good friend that they can talk to about anything, and even though two of the boys are away at college they still have traditions that they continue to do with her.  To mention only a couple – One is spending the night with her on New Year’s Eve, staying up, and celebrating.  They still like to go and watch ball games with her at her house, and visit with her when they come home.  They have been doing these traditions since they were very little and enjoy time with her.  My mother-in-law has been a BIG part of our family throughout the years.  She is at an age that I should be taking care of her, although she is still very healthy and even still walks 2 miles a day.  So… with my illness she takes care of our family as needed.  Yesterday she came over and swept & mopped my kitchen floor!  She helps my husband and boys do the things that I am no longer able to do.  Praise God for her!

My parents, brothers, family, and friends have prayed for me throughout this ordeal.  They live about 4 hours away so they can’t just drive over when needed.  I am thankful for being able to talk to them on the phone to get comfort and for their continued prayers.

Our 3 boys stepped up to the plate to take care of whatever needed to be done (shopping, cooking, cleaning, etc)  We have always been very close and it was difficult when they started missing more and more time with me because I was in bed too fatigued to get up,  When I was awake they would come in my room to talk and be with me as much as they could.  At my worst we had one child, Kyle, living out of the home and two at home.  Kyle would come over and help us as needed.  Our middle son, Tyler, used to come home from school at lunch when he was 15 – 17 to make and bring me lunch to my bed, offer to do anything that I needed, kept me company, and also would tell me jokes or do/say something that would make me laugh.  He and our youngest son, Ryan, would come home after school to be with me and help around the house instead of going out with friends.  This is something I will forever be grateful for.  All three of them have grown into nice, kind-hearted young men.

Thanks for reading my blog and if you have Fibromyalgia may you have a low pain day with extra energy! 


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