Posted tagged ‘Musculoskeletal Disorders’

Steroid Shots for Pain

September 30, 2012

I had steroid shots placed in the bursa area of my hip on Thursday to see if it would help with my hip pain.  I had developed pain with walking and it felt like it was bone on bone.  X-rays showed that my hip was ok.  The specialist put multiple steroid injections around the area of pain.  I could tell by the next day that it was helping, which was wonderful!!!  The drawbacks or side-effects of the shots were:  I was so wide awake that I only slept a total of 3 hours for 2 nights straight, my Fibro fog increased, the site was fairly swollen, bruised and painful, and it caused my Fibro to flare this weekend.  The GOOD news again is that it reduced the pain in my hip area so I no longer have the terrible pain when walking.  It is sad that so many things start flares in people with Fibromyalgia (meaning that their Fibro symptoms get worse).  Even treatment like steroid shots to help with hip pain start flares that make your Fibro worse.  I am thankful for any help I can get to reduce pain or increase energy, even at the cost of going through a Fibro Flare.  I don’t always…… but I want to try to look at the positives in my life.  May you be pain-free and have extra energy!

Fibromyalgia is a PAIN!!!

September 18, 2012

This is SO true!!  I haven’t had a second without pain in years.  Constant pain and fatigue is very draining on your body, mind, and soul.  I would give almost anything to have one day without pain and fatigue.  I am praying for a cure or at least medicine that will help me someday.  If you are out there struggling with fibromyalgia or another illness, just know that there are others out here that know what you are experiencing.  We are in this together and we need to encourage one another to live life to the fullest.

Blessings to you and your family.  Please feel free to comment.

Symptoms of Fibromyalgia

August 21, 2012

I wanted to repost a link that  http://myfibrostory.wordpress.com/ posted.  It is the most complete list of fibromyalgia symptoms that I have ever seen.  Take a couple of minutes to read.  It is well worth it.  The link is:   http://abarnabas.tripod.com/indexfibrosymptoms.html.

Let me know what you think.

So Fatigued I Can’t Open My Eyes

July 30, 2012

WHAT??  You can even open your eyes?  Sounds ridiculous doesn’t it?  Well…. yesterday was one of those days.  I started the day with lots of pain.  Pain in my hips, legs, shoulders, and hands.  I was in so much pain that I decided to take a pain pill.  It took longer for the pain pill to kick in but once it did it reduced my pain significantly.  I don’t know about you, but pain pills give me a spurt of energy – the type of energy that you just have to get up and do something.  When my spurt of energy started I decided to clean up my closet.  I took it easy but was able to make it look so nice.  Then the spurt of energy was gone.  Not only was it gone, but now EXTREME Fatigue kicked in.  When this happens I just have to go to bed.  I was in bed for the rest of the day and night.  I slept all night, but during the day yesterday I just napped off and on.  The fatigue was the extreme kind that I get periodically and I don’t even have the energy to open my eyes.  I had the tv on for some noise, but I could only lay with my eyes closed plastered to the bed.  I did some tossing and turning to try to stay comfortable since some of the pain returned as well.  It was the kind of fatigue if you have ever had it you know what I mean….. it was all I could do to breathe.  My sweet husband would come in to check on me periodically and I could hear him sneak in to not wake me.  I would say “I’m awake Sweetie, I am just still too tired to open my eyes”.  We would talk for a couple of minutes and then he would go on so I could rest.  I am still pretty fatigued today, but able to at least be up and actually HAVE MY EYES OPEN! 

Wishing for Some Good Days

June 14, 2012

I have been going through a bad time with my fibro the last few months.  I know some of it is due to Spring weather fronts.  I am so ready for some GOOD days.  I wish for you low pain days with lots of energy!

Fibromyalgia Pain

June 12, 2012

I have constant pain from fibromyalgia.  Life with constant pain causes many emotions, thoughts, and trials.  I have been in constant pain for over 10 years now.  I have thought before that I would give almost anything to have just one day without pain….. no, I would even take just one hour without pain….. I would even settle for just ONE MINUTE without pain.  Pain is a terrible thing to deal with every second of the day.  I try to do many things to help my pain and to try to take my mind off of the pain.  Some of these are writing a blog, connecting with distant relatives on facebook, water therapy, working in my flower bed, going on an occassional lunch date with a friend, etc.  I miss the person that I used to be.  The Ginger without pain.  I was without pain and didn’t have to think about pain.  I am a different person now.  Sometimes when you see me I may not look like I am hurting, but the pain is there eating away at me.  Just like others with chronic pain, I am pretty good at hiding it and putting a smile on my face, but the monster “PAIN” is still there.  Sometimes it is so great that I have to go to bed or I have to take a pain pill.  I don’t like taking pain pills.  I don’t want to get hooked on pain pills or get to the point that they no longer work for me.  When I take them they only take the edge off of the pain, but it makes it more bearable for me tolerate.  My pain now never gets below a 3 and goes to a 10.  How nice it would be to even get to 1 or 2 on the pain scale.  Hopefully there will be something to help me down the road.  (By the way when I talk about the pain scale – I had to revise mine a few years ago because my pain would go to a 15.  I no longer have pain less than an 8 on my old pain scale – which is now a 3 on my new pain scale.)  I hope and pray for relief from my new life – the one of  constant pain.  The thing I concentrate on is living my life to the fullest.

How relationships change when you have a chronic illness

May 16, 2012

It is strange to me how relationships change when you have a chronic illness.  Since I became so ill with Fibromyalgia, Osteoarthritis, & Back issues the relationships with my immediate and extended family are stronger, but the relationships with almost all friends have become more distant or non-existent.  I really miss “my friends” or were they really my friends??  😦

My husband and I have always had a loving and strong relationship, but since my illness our relationship has gotten even stronger – and I didn’t realize that it actually could!  I am grateful that he is so supportive and does anything to help make our lives easier.  I know this is not a “piece of cake” for him.  Relationships with our boys, my parents, mother-in-law, brothers and other extended family members are stronger as well.  I am also so thankful that my family is so supportive.

Friends on the other hand really surprised me.  I mostly had friends from work, friends that I went to church with, and neighbor friends.  My neighborhood friends are still my friends and I still hear from some of my old church friends that I know I could call on at any time.  Work friends that I thought were “my friends” are distant or non-existent except for a couple.  I had worked with some for almost 20 years and I had developed what I thought were really good relationships.  When I had to quit my career (5 years ago) I was VERY ill.  At first I would receive calls or emails from some of them but most just simply forgot about me.  I was too sick for a while to even think about trying to contact friends, and now that I am somewhat better, I normally have to be the one to initiate contact.  I realize that it is difficult to know what to say to people who are so ill, but trust me on this…. just say ANYTHING.  I am still a person and need friends to call and talk, to email me, to talk to me on Facebook, to ask me to go to lunch, etc.

Sorry if I sounded a little pathetic, but this is something that really hurts – way down deep.  Isn’t it strange how relationships change when you have a chronic illness.

Fatigue

May 14, 2012

I am so fatigued today I can barely think.  Fatigue is ever-present in patients with fibromyalgia.  I have spent many days in bed, on the couch, frequent naps, etc.  When my boys were younger they used to call the couch Mama’s charger (like a phone charger).  I preferred to rest on the couch so I could be with them and they got used to me being on “my charger” frequently to get some energy back.  Fibro patients get pretty good at fooling others concerning hiding fatigue and pain.  Sometimes I just HAVE to go to bed and get rest, but normally I try to take frequent rests in a lounge chair, on the couch, etc.  I find that I do better if I try to push myself a little rather than just staying in bed.  I am in CONSTANT pain and never get a break from it.  My Rheumatologist told me a few years ago that it appeared that I had Severe Fibromyalgia and that I would probably continue to have substantial pain and fatigue.  He also said that I would get to where I could tolerate the pain better and I thought he was simply crazy!  I reminded him about 6 months ago what he told me and that at the time I thought he was crazy, because how could anyone tolerate so much pain….. but I do.

The other day I went out to lunch with a good friend and we stopped by a store to pick up some flowers.  After a few minutes I told her that I had to go home because I was starting to crash.  She knew I was tired by that time and asked if I was in pain.  I told her that I am always in pain and yes the pain was getting to be too much and I needed to go home.  She had no idea that I had been hurting the entire time at lunch and the few minutes at the store.  I mentioned earlier that I was “starting to crash”.  What I mean by this is my fatigue is getting too great and I am going to have to lay down very soon.  I don’t do much shopping and I have been out before by myself and had to call my Mother-in-law to come and get me.  We leave my car there while she takes me home and my husband and boys go back later to pick up my car.  Once I was at a local grocery store for a few items and I got to the check-out and realized that I was about to crash.  Luckily one of our sons worked at the grocery store at the time and I asked the manager if my son could take me home since I didn’t feel well and we lived close.  He very kindly let my son take me home and unload my groceries while I went to bed.  W-E-L-L   ……. I am about to crash now so I need to stop for the day and go get some rest.

I wish for you and low pain day and extra energy!

Fibromyalgia Awareness Day 2012

May 12, 2012

Today is Fibromyalgia Awareness Day 2012 – wear purple in support.  This is not something that I am excited to do, looking forward to, wanting to do all of my life….. but it is a day to say I AM ONE OF MANY THAT HAVE FIBROMYALGIA AND WE NEED A CURE!  Fibro not only takes over your life, but it takes over the lives of your family and close friends.  It is something that has been difficult for me and my doctors to help me get much relief from the pain, fatigue, and many other symptoms.  It took from me precious time with my family, it took my career, it took half of our family’s income, it took my health, it took my total independence, it took a lot of my happiness at times….. but it is not who I am, it is an illness that I have and I try each day to take back more of my own life.  I am spending today with my husband and 3 boys and I intend to enjoy the entire day and try to live life to the fullest!!

I wish for you today a low pain day and extra energy! 

My Fibromyalgia Story updated due to FIBRO FOG

May 11, 2012

Well, this morning I was rereading my blog from yesterday and realized I had left out some KEY people in helping over the years as I have struggled in living with Severe Fibromyalgia.  This is due to Fibro Fog that clouds my mind and doesn’t let the necessary connections be made so I can think clearly, be able to complete sentences when I am talking, or remember even half of my past.  I will do a blog soon on Fibro Fog and talk indepth about it.

My mother-in-law, Nina, has helped with everything from activities with the boys or anything they wanted to do (including playing baseball with her in the backyard), cleaning my house, cooking us meals, etc.  She lives only a minute away and has been here in a minutes notice when I have needed her.  She helped us raise the boys when I was still able to work, she took them to spend the night with her on Friday nights to give me and my husband some quiet time, she has been a good friend that they can talk to about anything, and even though two of the boys are away at college they still have traditions that they continue to do with her.  To mention only a couple – One is spending the night with her on New Year’s Eve, staying up, and celebrating.  They still like to go and watch ball games with her at her house, and visit with her when they come home.  They have been doing these traditions since they were very little and enjoy time with her.  My mother-in-law has been a BIG part of our family throughout the years.  She is at an age that I should be taking care of her, although she is still very healthy and even still walks 2 miles a day.  So… with my illness she takes care of our family as needed.  Yesterday she came over and swept & mopped my kitchen floor!  She helps my husband and boys do the things that I am no longer able to do.  Praise God for her!

My parents, brothers, family, and friends have prayed for me throughout this ordeal.  They live about 4 hours away so they can’t just drive over when needed.  I am thankful for being able to talk to them on the phone to get comfort and for their continued prayers.

Our 3 boys stepped up to the plate to take care of whatever needed to be done (shopping, cooking, cleaning, etc)  We have always been very close and it was difficult when they started missing more and more time with me because I was in bed too fatigued to get up,  When I was awake they would come in my room to talk and be with me as much as they could.  At my worst we had one child, Kyle, living out of the home and two at home.  Kyle would come over and help us as needed.  Our middle son, Tyler, used to come home from school at lunch when he was 15 – 17 to make and bring me lunch to my bed, offer to do anything that I needed, kept me company, and also would tell me jokes or do/say something that would make me laugh.  He and our youngest son, Ryan, would come home after school to be with me and help around the house instead of going out with friends.  This is something I will forever be grateful for.  All three of them have grown into nice, kind-hearted young men.

Thanks for reading my blog and if you have Fibromyalgia may you have a low pain day with extra energy! 


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