Posted tagged ‘Musculoskeletal disorder’

So Fatigued I Can’t Open My Eyes

July 30, 2012

WHAT??  You can even open your eyes?  Sounds ridiculous doesn’t it?  Well…. yesterday was one of those days.  I started the day with lots of pain.  Pain in my hips, legs, shoulders, and hands.  I was in so much pain that I decided to take a pain pill.  It took longer for the pain pill to kick in but once it did it reduced my pain significantly.  I don’t know about you, but pain pills give me a spurt of energy – the type of energy that you just have to get up and do something.  When my spurt of energy started I decided to clean up my closet.  I took it easy but was able to make it look so nice.  Then the spurt of energy was gone.  Not only was it gone, but now EXTREME Fatigue kicked in.  When this happens I just have to go to bed.  I was in bed for the rest of the day and night.  I slept all night, but during the day yesterday I just napped off and on.  The fatigue was the extreme kind that I get periodically and I don’t even have the energy to open my eyes.  I had the tv on for some noise, but I could only lay with my eyes closed plastered to the bed.  I did some tossing and turning to try to stay comfortable since some of the pain returned as well.  It was the kind of fatigue if you have ever had it you know what I mean….. it was all I could do to breathe.  My sweet husband would come in to check on me periodically and I could hear him sneak in to not wake me.  I would say “I’m awake Sweetie, I am just still too tired to open my eyes”.  We would talk for a couple of minutes and then he would go on so I could rest.  I am still pretty fatigued today, but able to at least be up and actually HAVE MY EYES OPEN! 

Fibro Fog we are SICK AND TIRED OF YOU!!

July 27, 2012

I love this!! 

This was posted on facebook today by Fibromyalgia Network!/FibroNetwork

Skin Issues with Fibromyalgia

May 23, 2012

I wanted to share this since I just talked about it Monday.  The information below was posted by the Fibromyalgia Network.

Research on Fibromyalgia Skin Sensitivities
Does your skin burn or itch? Do you frequently get rashes that just won’t go away? According to Charles Lapp, M.D., who treats hundreds of people with fibromyalgia at his center in Charlotte, NC, “fibromyalgia-related rashes occur in the majority of patients that I see.” Lapp, along with another experienced physician, Daniel Wallace, M.D., of UCLA, agrees that skin sensitivities are common in fibro. So what is it about your skin and its related tissues that make them so sensitive? Studies during the past 20 years may help explain why your skin is such a nagging issue. •Xavier Caro, M.D., of Northridge, CA, performed most of the early research in this field to show that there was a high concentration of immune-reactive proteins in the area just beneath the surface of the skin. He theorized that these proteins had escaped through larger-than-normal pores in the blood vessels supplying the skin, and they could be a source of immunological reactions because the body would view them as “foreign” substances in the skin tissues (i.e., it is not normal for these proteins to pass through the blood vessels). •Although Caro’s findings point to an immunological disruption in the skin of patients with fibromyalgia, they are commonly seen in conditions where the microcirculation (the capillaries and small blood vessels) has undergone changes. Haiko Sprott, M.D., of Switzerland, reported that the number of capillaries in the skin of fibromyalgia patients were significantly reduced and irregular in shape. The amount of blood flow to the peripheral tissues (such as the skin) was substantially reduced as well. •A Swedish team found a fourfold increase in the number of mast cells in the skin of fibromyalgia patients. Mast cells, part of the immune system, are filled with many chemicals such as histamine and cytokines (both can cause painful irritation in the surrounding tissues when released from the mast cells). Neurological impulses can cause mast cells to dump their contents (degranulate), eliciting a neuro-immune response. The authors of this study point out that, perplexing, the mast cells are degranulated in areas where the skin looks “normal.” In other words, the surface of the skin does not convey the immunological, neurological, and blood flow abnormalities that are occurring in the tissues below!
Taken together, the above findings may help explain why you are often troubled with rashes that are difficult-to-treat. Even if the skin appears normal on the surface, there is a lot going on beneath the surface to fuel your skin irritations and itchy/burning sensations.

Sensitivity that can go along with Fibromyalgia

May 21, 2012

With fibromyalgia I have heightened senses that cause sensitivity to touch, sight, smell, hearing, & taste.

 TOUCH -Have you ever had someone touch you and it hurts?  It feels like there are little needles in your skin with the slightest touch.  It is kind of like what it feels to touch a cactus.  OUCH!  Clothes even hurt and I have to cut most tags out because they seem to be digging into my skin..  There are certain materials that I just can’t wear, and I can tell immediately if it will irritate my skin as soon as I try it on.  I buy the softest socks I can find and prefer the seamless toe style because even the seam in socks bother my feet.  A trick I found out from my mother-in-law is to turn socks inside out and they are softer and feel much better.  SIGHT -My eyes are more sensitive to light since I was diagnosed to fibromyalgia.  There are times that I just want they lights turned off or dimmed because of this symptom.  SMELL -My sense of smell is so much stronger than it should be.  I had a heightened sense of smell when I was pregnant with our boys, but with fibromyalgia it is off the charts.  I have to buy a lot of unscented products because the odors seems so strong and offensive that they make me sick.  Our boys went fishing this weekend and when they came in they had lake water on them that smelled like fish.  I was so nauseated from the smell that I had to leave the room.  HEARING – I am sensitive to certain noises.  Normally it is something loud that seems to hurt my ears and I have to get away from it.  TASTE – As with the other senses I have a heightened sense of taste.  Food doesn’t seem to taste like it used to and some tastes I am not able to tolerate.  I also get an irritated tongue, irritated inside of my mouth, and irritated throat.  My tongue feels like it has little stickers all in it.  It is basically the same sensation that I feel on my skin, but it is in my mouth.  It seems so raw and irritated sometimes that it makes it kind of difficult to eat.  My rheumatologist gives me a prescription to help with this.  You swish with a small amount and it halfway numbs the inside of your mouth.  I think it is a medicine that they also use for patients with canker sores/mouth sores.  It helps relieve it a little while.  I try to overlook the heightened senses as much as possible and deal with them the best that I can.

Fibro Fog (the brain stealing part of Fibromyalgia)

May 18, 2012

Fibro Fog is the symptom that I dislike the most that goes along with Fibromyalgia.  It takes a perfectly good brain and turns it into one that can’t seem to get the right connections to make it work properly.  I have fibro fog every minute of every day, but it has degrees.  Sometimes my brain will be affected very little and sometimes it is greatly affected.  For those of you without fibro – think of it as when you are driving your vehicle and it is a foggy morning.  Sometimes the fog in front of you is so dense that you can barely see the rode much less the car in front of you and you certainly can’t see anything on the side of the road.  Then sometimes there is a light fog and you can almost see fine but it clouds a little of your view.  This is how fibro fog is to us except it is inside our brain.  On a scale of 1 to 10 it can be anywhere on the scale and can change within a minute.  This makes us forget where we put things, forget important things that we were going to tell you, forget what we were doing, forget your name, and even forget what we were saying in the middle of a sentence.  We also can be in the middle of talking and just stop because we can’t think of the word we are trying to say.  When this happens to me it is like the wheels are turning in my brain but it just can’t make the connection to give me the right word.  This is VERY frustrating and sometimes embarrasing.  For example:  I could be talking about wanting to go get a pizza for dinner.  I am able to say “Why don’t we go get a …..” and I just stop and can’t think of the word, the thing that I was thinking about that I wanted to get for dinner.  Sometimes my family will try to guess the word, and then sometimes I describe the word.  So I would say “It is round, they put sauce and whatever stuff you want, and then put cheese on top”.  So my family can tell me the word that my brain can’t give me.  My family is used to this and when it happens I don’t get embarrased with them, but sometimes I still get frustrated.  Instead of getting frustrated I try to laugh it off with them, because it keeps me from getting frustrated.  When I am out in the world and this happens I normally say “fibro fog” “Sorry, I have Fibromyalgia”.  Most people know of this, but it is still embarrasing to me and very frustrating.  What do you do when this happens to you?

Once when I had a dentist appointment that is only 15 minutes away and in town I had one of my worst times with fibro fog.  We had used this dentist for years and I had been going and even taking my children to their appointments.  On this day it was an appointment for me for a 6 month teeth cleaning.  I started to the dentist and when I stopped my car I was parked in a parking lot for a local university.  I was sitting there wondering what I was doing there and where was it that I was going?  In a minute or two I remembered that I was on my way to the dentist and he was still 5 minutes away.  I called my husband at work and freaked out concerning what had just happened.  He wanted to come and get me but I said that I was now ok and I could make it on my own since the office was only 5 minutes away.  That incident was very scary.  When I am foggy and feel that I shouldn’t get out, I just call and cancel my appointments or call for my husband or mother-in-law to come and take me.  For a while when I would get out I would write down where I was going and what streets to take to get there.  Now, I am ok with jotting down the name of the business or the errand that I want to do and just thinking in my head what streets that I will take to get there.  When I am in more pain my fibro fog increases.  Does yours?

My husband and I are best friends and tell each other everything.  Well… now since I have fibro fog I forget to tell him things ….. even important things.  Sometimes I just totally forget about it for days or weeks and sometimes I ask him if I have told him something.  I am FOREVER saying to him and other family members “Have I already told you ……….”  It is something that has popped in my mind and I can’t remember if I have told them or not.  I have also lost so many memories of my life from childhood and on.  Sometimes I am talking with my parents and brothers when they will bring up something that happened while I was at home and I at least half of it I don’t remember at all.  This is true concerning my 32 years of marriage with my husband.  There are many, many things that I just don’t remember at all.  This is something that really bothers me, because family and memories are so precious and important to me.  Does fibro fog affect you in this way?

What I try to do to help me with fibro fog is make a list of things that I want to try to do that day.  This could be things in the house that I would like to do and/or things I need to do by running an errand.  I like to make a list and mark it off as I accomplish the task.  If I don’t get them all done then there is always tomorrow.  My list could be: take morning medicine, do laundry, load dishwasher, call #### for their birthday, go to grocery store to pick up bread & milk, take evening medicine.  There are things on the list that I HAVE to do and things on the list that have lower priority and could wait until tomorrow if my energy runs out or my pain becomes too great.

I would love to hear your stories about fibro fog or what your thoughts are on fibro fog .

%d bloggers like this: