Posted tagged ‘Fibromyalgia’

Nap Time!

August 28, 2012

 

I went to my rheumatologist yesterday and my pain level was high.  He gave me a pain shot to help relieve my pain.  It helped but it took it longer than normal.  My wonderful Mother-in-law came over and did housework for me.  Love her so much!  Today my pain has been low and my energy is ok, so I ran a couple of errands that are close to home.  Now it’s time for my daily rest/nap!!

Lovely Blog Award!

August 22, 2012

Lovely Blog Award

I was nominated for the LOVELY BLOG AWARD by painfighter.wordpress.com and I am so excited!!  I really needed the boost.  I have been having lots of pain and fatigue lately and haven’t felt like posting anything much less reading blogs.  Thanks so much painfighter!

The requirements of the Award are to mention who nominated me and link back to his/her blog, display the award image anywhere on my blog, reveal 7 things that you may not know about me, nominate 15 blogs for the award and tell them of the nomination (linking their blogs in this post) including a link back to this post.

7 things about me:

  1. My favorite color is blue.
  2. I love working in my flower bed.  This is my play time!
  3. I love watching crime shows especially “The First 48” on Netflix.
  4. I married my high school sweetheart and we have been married 32 years.
  5. My favorite foods are Pizza and Mexican food!
  6. I have 3 awesome sons, 2 wonderful brothers, and my sweet Dad and Mom have been married 55 years.
  7. I love country music.

My nominations are:

  1. http://modifiedgirl.wordpress.com/
  2. http://jimmersgirl.wordpress.com/
  3. http://walkingthroughpain.wordpress.com/
  4. http://myfibrostory.wordpress.com/
  5. http://staciegh.wordpress.com/
  6. http://fibromyalgianotebook.wordpress.com/
  7. http://myeverlastingcompanion.wordpress.com/
  8. http://theinvisiblef.wordpress.com/
  9. http://whatonearthisfibro.wordpress.com/
  10. http://auredhead.wordpress.com/
  11. http://couchedfibromum.wordpress.com/
  12. http://restoringmysoul.wordpress.com/
  13. http://dark2light.wordpress.com/
  14. http://fibromale.wordpress.com/
  15. http://25pillsaday.wordpress.com/

Congratulations everyone!!

 

 

Symptoms of Fibromyalgia

August 21, 2012

I wanted to repost a link that  http://myfibrostory.wordpress.com/ posted.  It is the most complete list of fibromyalgia symptoms that I have ever seen.  Take a couple of minutes to read.  It is well worth it.  The link is:   http://abarnabas.tripod.com/indexfibrosymptoms.html.

Let me know what you think.

Sisterhood of the World Bloggers Award!

August 10, 2012

I am so honored to be nominated by two bloggers for for the Sisterhood of the World Bloggers Award!!  Thanks to Kimberly L. Basinger-Coker of the blog  http://makingthejourneyhome.wordpress.com/ AND http://fogandshadows.com/ for nominating me.  This award was inspired by the Sisterhood of Traveling pants and is an award for female bloggers to encourage the spirit of sisterhood.  This means a lot to me and again I say thanks.

Here are the rules:

1. Thank the giver

2. Post seven things about yourself

3. Pass the award on to seven other bloggers and inform them that they have been nominated

4. Include the logo of the award on a post in your blog.

Seven Things About Me:

1.  I am a believer, I love God, and I look forward to spending eternity in His presence.

2.  I married my high school sweetheart, Joe.  We were 18 years old and “head over hills in love”.

3.  My husband and I have been married 32 years and are still “head over hills in love”!!

4.  God blessed us with 3 wonderful sons.

5.  I have Severe Fibromyalgia and really miss my old life.

6.  My Fibro was so bad at one time that I spent 2 entire years in bed with extreme pain and fatigue.

7.  I am “trying” to learn to live my new life to the fullest – sometimes it is very difficult.

Seven Deserving Blogs

1.  http://barefootmeds.wordpress.com/

2.  http://thelaughinghousewife.wordpress.com/

3.  http://myeverlastingcompanion.wordpress.com/

4.  http://staciegh.wordpress.com/

5.  http://youngfibro.wordpress.com/

6.  http://halfwaybetweenthegutter.wordpress.com/about-the-author/

7.  http://25pillsaday.wordpress.com/

Congratulations!!

Epidural Injection for Back Issues

August 7, 2012

Yesterday I had my 4th Lumbar Epidural Injection for my lower back pain.  I have had back pain for years but just thought it was part of my FIBRO.  My rheumatologist sent me a few months ago to have an MRI on my lower back and I find out I have:

-Degerative Disc & Facet Disease (especially L4 & L5)

-Protruding Disc with Bony Spirring

-Stenosis in L4 & L5 with Displacement and Compression of the Exiting Left L4 Nerve Root

Well….. isn’t that nice?  I say that sarcastically, but it is nIcE in a sTrAnGe way.  I had my series of 3 epidural injections with the last one in May.  I had SIGNIFICANT relief in one week!!  So I was able to get rid of some of my pain and at least the back pain has nothing to do with my severe fibromyalgia.  I was given steroid, short-term pain medicine, and long-term pain medicine.  They never know how long this will help an individual, but I have talked to a few that have gotten relief for 3 to 5 years.  My pain returned after 3 months, but it was a GLORIOUS 3 months with little back pain!  I was told that some patients may have to go every 3 months since the medication works differently in each patient.  The anesthesiologist told me that since I am back within the 3 months that it meant that I was getting most of my pain relief from the steroid.  He told me that I would be a good candidate for back surgery by reviewing my issues and that it could potentially help my issues for long-term.  I am not excited in the least about the possibility of having back surgery, but it would be so nice to FINALLY be able to “FIX” something.  I have found with Fibromyalgia there is not much that you can “FIX”.  I hear that there is research being done that could one day be able to help fibro patients and I welcome the day.  There are medicines that help some people with fibro, there are some people who have a touch of fibro, and there are people like me that take medicine that helps a wee bit but still suffer from constant pain.  So with all the stuff that I have going on with my lower back is kind of a “good thing”, because it is something that can be “FIXED”.

Isn’t it weird how perspective can change depending on how you are affected and the pain that you endure daily? 

Fibro Fog we are SICK AND TIRED OF YOU!!

July 27, 2012

I love this!! 

This was posted on facebook today by Fibromyalgia Network  https://www.facebook.com/#!/FibroNetwork

Fatigue & a Little about Raynaud’s Syndrome

July 21, 2012

Today the FATIGUE MONSTER still has me but I am out of bed doing a little here and there. When I am in bed too long my body hurts all the way down to my bones. I love life and determined to make the best of it. The major symptoms of fibromyalgia is pain and fatigue. Some patients have constant pain like I experience. The following is from the National Fibromyalgia Association’s website. It lists some of the other symptoms of fibromyalgia. I want to talk about one today (Raynaud’s Syndrome).

“Other symptoms/overlapping conditions
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud’s Syndrome, neurological symptoms, and impaired coordination.”

Raynaud’s Syndrome is where your hands and feet (sometimes the tip of your nose or ears) feel numb and bone-chilling cold. What causes this is the smaller arteries that supply blood to your skin narrow, limiting blood circulation to these areas. I have this and it happens more to me when temperatures are cool. My hands and feet get so cold that they hurt and wearing gloves/socks doesn’t seem to help. For me it is periodically during the day so I am constantly putting on or taking off gloves in the winter. Seems like 100 times a day. My fingers and toes turn white then a bluish color at times. I also use a heating pad to help.

Blessings to you!

 

Fibromyalgia Pain

June 12, 2012

I have constant pain from fibromyalgia.  Life with constant pain causes many emotions, thoughts, and trials.  I have been in constant pain for over 10 years now.  I have thought before that I would give almost anything to have just one day without pain….. no, I would even take just one hour without pain….. I would even settle for just ONE MINUTE without pain.  Pain is a terrible thing to deal with every second of the day.  I try to do many things to help my pain and to try to take my mind off of the pain.  Some of these are writing a blog, connecting with distant relatives on facebook, water therapy, working in my flower bed, going on an occassional lunch date with a friend, etc.  I miss the person that I used to be.  The Ginger without pain.  I was without pain and didn’t have to think about pain.  I am a different person now.  Sometimes when you see me I may not look like I am hurting, but the pain is there eating away at me.  Just like others with chronic pain, I am pretty good at hiding it and putting a smile on my face, but the monster “PAIN” is still there.  Sometimes it is so great that I have to go to bed or I have to take a pain pill.  I don’t like taking pain pills.  I don’t want to get hooked on pain pills or get to the point that they no longer work for me.  When I take them they only take the edge off of the pain, but it makes it more bearable for me tolerate.  My pain now never gets below a 3 and goes to a 10.  How nice it would be to even get to 1 or 2 on the pain scale.  Hopefully there will be something to help me down the road.  (By the way when I talk about the pain scale – I had to revise mine a few years ago because my pain would go to a 15.  I no longer have pain less than an 8 on my old pain scale – which is now a 3 on my new pain scale.)  I hope and pray for relief from my new life – the one of  constant pain.  The thing I concentrate on is living my life to the fullest.

Why me??

May 31, 2012

If you are like me you have asked that question a hundred times.  Why do I have severe fibromyalgia, why do I have osteoarthritis, why do I have lower back issues,  why do I have constant pain, why do I have to be so fatigued, why did I have to quit my career at a company that I loved, why did this have to affect my family so much, why did this happen to me so my family has to worry about me, why do I have to have fibro fog, etc.

I mostly ask these questions when I have a high pain level that makes my fibro fog increase as well.  When this happens I can’t think clearly and I feel like the weight of this illness is crashing down around me.

When I ask myself these questions I normally think that if someone in our family had to have this illness and suffer so much – WELL, I would rather it be me that anyone else.  I wouldn’t want my husband or children have constant pain and fatigue along with a list of symptoms as long as my arm.  I wouldn’t want my parents, mother-in-law, or brothers to have this terrible, chronic illness.  So if I had to choose…. I would rather it be me.  I wouldn’t wish this disease on anyone!  I am trying to cope and accept this illness, but it is very difficult.  If only I could have one day without pain, or one hour without pain, or EVEN one minute without pain, I would give anything and give God the glory.  Fibro fog is the symptom that I hate the most, but the pain is all consuming and never stops.  I am always somewhere on the pain scale of 1 to 10 – I normally stay somewhere between a 3 to a 10.  A question that my husband asks me frequently throughout the day is “What is your pain level?”  It is like he is my caretaker, but he like to know so he can better help me at the time.  We have been married 32 years and he is a keeper.  He wants to help take care of me the best that he can and tells me frequently that he will always take care of me.  This is very comforting to know because there are people out there that are single or single parents that don’t have the awesome support that I have from my husband.  I don’t know how they cope.  I guess if you have to you just do it.

My husband and I talk frequently about why I have this illness.  We think that maybe it is so we can help others that are dealing with an illness or pain of any kind  in their life.  Sometimes it is all I can do to just take care of myself and then sometimes I am able to get out a little and I will run across an opportunity to help others.  I also blog and post on facebook to hopefully help others and in return it helps me as well.

Please leave a comment and let me know what you think about this and how you cope with the question “Why me?”

I wish for you a low pain day with extra energy! 

Do What Makes You Happy!

May 25, 2012

Life is so busy and can become complicated especially if you have a chronic illness.  I USED to want my house tidy and clean, but I have learned to take care of myself, DO WHAT MAKES ME HAPPY, and then do what I can in the house.  My husband helps as well.  I have plenty that I could do today in the house, but I woke up at 2:00 this morning in pain and couldn’t sleep after that.  At 5:00 when my husband woke up we went outside, sat in our comfortable lounge chairs, enjoyed some coffee, and talked until he had to get ready to go to work.  Then….. I did one of the things that I enjoy so much and is even relaxing.  I watered my flowers, shrubs, and veggies.  Yes, this is something that is enjoyable to me!  Other things I love to do that “make me happy” – just being with my husband and boys, weeding my flower and veggie beds, pool therapy, calling to check on  my Dad & Mom, talking with friends/family or going to lunch, talking with my mother-in-law, making a special dessert for my family, spending time with the Lord,  sending a card or emailing friends that are in another state, getting a massage, going for a manicure, getting a pedicure with a unique design, visiting my parents and family in my hometown, looking at family photos, staying connected with family/friends on Facebook, listening to country music, having a cook-out with all of the neighbors, getting a call from my brothers, and many other things.

My point is life is too short and we try to do too many things and by doing this we sometimes miss out on the important things in life.  Also with a chronic illness I never know from one minute to the next on when I will be too sick to take advantage of doing the things that make me happy.  I have found that sometimes when I am in great pain instead of going to bed or resting on the couch like my body seems to want to do I can go outside and spend time watering or weeding.  Because it is something that I love to do –  it sometimes helps me push through the worst of the pain.  This doesn’t always work but it is worth a try.

For the chronic pain sufferers  – I hope for you a low pain day with extra energy.  Remember, DO WHAT MAKES YOU HAPPY!!


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