Posted tagged ‘Fibromyalgia’

Back Surgery

November 25, 2013

I had back surgery on October 31st and it was a very scary time, but God kept me safe and saw me through.  During surgery I had a severe asthma attack so they had to stop surgery.  I was kept in recovery about 10 hours due to a very low oxygen level, breathing issues, heavy chest, they thought I might even have a blood clot in my lungs, etc.  During this time I felt like I was dying and by the look on the faces of my doctor and nurse – they were having the same kind of thoughts.  I have since returned to see my neurosurgeon and he told me of how concerned he was and had bad that I scared him.  My neurosurgeon is an awesome, caring person and I had the most wonderful recovery nurse that stayed with me during the entire 10 hour ordeal – – even going with me for nuclear test, scans, other tests.  She held my hand many times and I told her that I felt like I was dying and I thought if I closed my eyes that I wouldn’t wake up.  I could actually feel the life fading out of me.   … I prayed for God to spare me to be with my family and see my boys grow up and have families of their own.  My neurosurgeon would come and be with me in recovery between other surgeries.  I thought to myself “so this is what it feels like to be dying”.  After an hour or so of being in recovery the nurse said she was going to make a BIG exception and go get my husband to be with me as well.  She said the hospital doesn’t allow any family to come in recovery, but she felt that this one time she needed to make an exception.  It was nice to have my sweet hubby for support as I fought for my life.  The recovery room was a very large rectangular room with surgery patients lined up on each side but with plenty of room for nurses and doctors moving about.  In the mean time my husband, Joe, had called for prayer from church groups, family, and friends. During the time of my ordeal I did think – well, I guess I will get to see Jesus, Lisa, Paul, Uncle Merle, Aunt Sue, Aunt Virginia, Aunt Pat, Aunt Annie, and many other friends and family that have passed on. I went through many tests, scans, and an hour of doing a nuclear test to see if a blood clot had gone to my lungs.  During the test I started to slowly feel better and started having thoughts that I might even be able to stay on this earth a little longer.  Within the next hour my oxygen level went back to normal, the heaviness of feeling like an elephant was sitting on my chest went away, and I knew that God had answered prayers.  They never found what caused some of my issues during and after surgery – God just simply made it disappear.  I praise God that I am alive and able to be with my family.  I am on the mend, I no longer have constant sciatic nerve pain, numbness, and tingling in my right leg and foot.  Praise God!  My Fibromyalgia has flared as expected after surgery, but that is something that I deal with on a daily basis.  Blessing friends!
Advertisements

Tattoo of Love

January 27, 2013

Tattoo of Love

Our middle son, Tyler, surprised me today with a tattoo that he got on his arm. It is the purple fibro ribbon on a cross because he said “through Jesus that he hoped there would be a cure for fibromyalgia someday”. It was so touching – yes, I cried my eyes out. I agree, hopefully through Jesus someday there will be a cure.

Frequent Nausea??

November 1, 2012

I am having a “fatigue monster” kind of day.  It is noon and I am just able to crawl out of bed.  My body started hurting so much that I had to get up for a while.  I am also sick to my stomach so I am making rice to eat for lunch.  My son, Tyler, brought me breakfast in bed this morning so I could take my medicine (Carnation Instant Breakfast was all I could get down) .  I have nausea frequently does anyone else have this problem?

Fatigue Monster

October 5, 2012

The BIG, BAD, Fatigue Monster has me again.  After having injections in my hip I got a virus that made me so sick for 4 days, then the fatigue monster took over and I can’t seem to shake it.  It has been a week since I first got sick with the virus and I am still so fatigued that I can barely get up much less STAY UP all day.  I have been sleeping 12 to 16 hours at a time and then taking a nap during the day as well.  I told my husband that I am so ready to get back to my “normal sick”.  With my chronic illness I am in constant pain and fatigue with numerous other symptoms and when I get an illness on top of that it is almost more than I can take.  I am even ready to get back to my “normal sick”.  I told my husband that it is weird to want to get back to ONLY being chronically ill.  Does that mean that I am ok with it or have accepted being chronically ill??  NO!!!  I still don’t like it one bit and I still haven’t accepted it, but it is what I am used to since I have been chronically ill with Severe Fibromyalgia for over 10 years now.  All I can say is the Fatigue Monster better watch out and go away soon or I will have my friends, family, and my fibro friends kick his butt!!

Steroid Shots for Pain

September 30, 2012

I had steroid shots placed in the bursa area of my hip on Thursday to see if it would help with my hip pain.  I had developed pain with walking and it felt like it was bone on bone.  X-rays showed that my hip was ok.  The specialist put multiple steroid injections around the area of pain.  I could tell by the next day that it was helping, which was wonderful!!!  The drawbacks or side-effects of the shots were:  I was so wide awake that I only slept a total of 3 hours for 2 nights straight, my Fibro fog increased, the site was fairly swollen, bruised and painful, and it caused my Fibro to flare this weekend.  The GOOD news again is that it reduced the pain in my hip area so I no longer have the terrible pain when walking.  It is sad that so many things start flares in people with Fibromyalgia (meaning that their Fibro symptoms get worse).  Even treatment like steroid shots to help with hip pain start flares that make your Fibro worse.  I am thankful for any help I can get to reduce pain or increase energy, even at the cost of going through a Fibro Flare.  I don’t always…… but I want to try to look at the positives in my life.  May you be pain-free and have extra energy!

Shots!! Make the Pain Go Away…… PLEASE!!

September 28, 2012

I have been having so much back pain and hip pain that I have been getting Lumbar Epidural Injections and today I was sent to see an Orthopaedic Surgeon.  He ended up giving me a steroid shot in my bursitis area in my left hip.  He says that my left hip is covered in arthritis, bone spurs, pinching the nerve that causes my sciatica nerve issues.  My bruise is lovely that I got today.  The steroid shot  helped me so much by noon that I was doing little projects that I haven’t been able to do (just light work).  THEN, I went outside to get the mail and the grass was wet.  When I came back in I walked across our living room carpet in my tennis shoes, then onto the tile in the kitchen.  I made it by the refrigerator and fell so hard on my right knee and my left hip.  I pulled the area that had been hurting so much before the steroid shot in my hip.   AARRGG.  I was so upset that I called my husband to come home early to be with me.  I was in the floor crying, I was pissed, in pain, frustrated because every time it seems I get better I get knocked down with pain or fatigue in some way.  Right now I am pretty sick of this Fibro thing, the hip issue, and the back issue.  Someone make it go away!!!  They say that I will eventually need back surgery.  I won’t get pain relief from the sciatic nerve until I have the back surgery.  The nerve is being pinched so badly that all it knows to do is PAIN.  I also have the bulging disc, lots of arthritis, degenerative spurring, ventral flattening of the thecal sac, degenerative changes are most prominent at L4-L5 where there is a broad posterior and left foraminal disc protrusion with bony spurring.  There is moderate to severe left foraminal stenosis at L4-L5 with displacement and compression fo the exiting left L4 nerve root.  So……. sometime in the future I will be having back surgery.  They say this is the only thing that will help relieve my back and sciatica nerve pain.  I think I will try the shots for a while and when I just can’t stand it anymore – I wll schedule the surgery. 

So tell me – have you taken pain pills, pain shots, epidural injections for pain, steroid shots?  Tell me your experience I would love to hear it.

WARNING! Fibro Person Coming Your Way!!

September 25, 2012

“Fibro Colors” posted this today on Facebook and maybe here as well (not sure).  I can relate to this SO well.  I think some of it is due to Fibro Fog.  Not only do I trip over invisible things – I run into the same door knobs walking through the hall day after day (my arms show the bruises), and hit the same door frames with my arms.  If I am coming your way…… WATCH OUT!


%d bloggers like this: