Posted tagged ‘Fibro’

I’m BACK!!!

April 10, 2013

frog jumping

I haven’t been on in a while.  To make a long story short.  I have had a lot of fibro pain and fatigue to the point of having in bed days.  Our middle son, who is 21, got both hands burned at work when a torch exploded.  It was a large fireball that singed his hair, eyebrows, eyelashes, nose hairs, BUT God spared his face.  The only thing burned was his hands.  I have never been around anyone that had been burned and it was horrible.  Even with pain pills he was in so much pain.  We had to put creams on and wrap his hands multiple times each day.  The entire family pitched in to help feed him, doctor his hands, give him drinks, and even give him sponge baths out of the kitchen sink.  It totally broke my heart.  The good thing is we have one of the best burn hospitals within 30 minutes of our home and he had a wonderful doctor.  We took him for treatment weekly and he was burned so bad that he had to have a skin graft to one hand and it is doing wonderful.  He is back to work, pain-free, and they say he will have a complete recovery.  Praise God!  I am glad to be back with my friends and look forward to hearing from you and reading your posts.

On another note – our weather has been crazy lately with numerous storms, weather fronts, etc.  Yesterday it was 80 degrees and then last night it got down to 30 degrees.  Talk about crazy!  No wonder I have been hurting so much.  Yesterday I picked some asparagus, admired my flowers coming up, saw zillions of blooms on my strawberries, and noticed the peach tree was full of blooms.  Today my peach tree has ice on the limbs and it looks sad with it limbs under the stress of the rain that froze on it.  Last night we put trash bags around my patio banana, lemon, lime, and orange trees.  We put buckets, tubs, pails, anything we could find to cover as much as we could to try to save it from the cold air.  The ground is wet and it is supposed to be 28 degrees tonight and then after that I think it will go back to our normal April weather.  It is so weird to get a winter storm in April here in Oklahoma.

Blessings to you!

Steroid Shots for Pain

September 30, 2012

I had steroid shots placed in the bursa area of my hip on Thursday to see if it would help with my hip pain.  I had developed pain with walking and it felt like it was bone on bone.  X-rays showed that my hip was ok.  The specialist put multiple steroid injections around the area of pain.  I could tell by the next day that it was helping, which was wonderful!!!  The drawbacks or side-effects of the shots were:  I was so wide awake that I only slept a total of 3 hours for 2 nights straight, my Fibro fog increased, the site was fairly swollen, bruised and painful, and it caused my Fibro to flare this weekend.  The GOOD news again is that it reduced the pain in my hip area so I no longer have the terrible pain when walking.  It is sad that so many things start flares in people with Fibromyalgia (meaning that their Fibro symptoms get worse).  Even treatment like steroid shots to help with hip pain start flares that make your Fibro worse.  I am thankful for any help I can get to reduce pain or increase energy, even at the cost of going through a Fibro Flare.  I don’t always…… but I want to try to look at the positives in my life.  May you be pain-free and have extra energy!

Shots!! Make the Pain Go Away…… PLEASE!!

September 28, 2012

I have been having so much back pain and hip pain that I have been getting Lumbar Epidural Injections and today I was sent to see an Orthopaedic Surgeon.  He ended up giving me a steroid shot in my bursitis area in my left hip.  He says that my left hip is covered in arthritis, bone spurs, pinching the nerve that causes my sciatica nerve issues.  My bruise is lovely that I got today.  The steroid shot  helped me so much by noon that I was doing little projects that I haven’t been able to do (just light work).  THEN, I went outside to get the mail and the grass was wet.  When I came back in I walked across our living room carpet in my tennis shoes, then onto the tile in the kitchen.  I made it by the refrigerator and fell so hard on my right knee and my left hip.  I pulled the area that had been hurting so much before the steroid shot in my hip.   AARRGG.  I was so upset that I called my husband to come home early to be with me.  I was in the floor crying, I was pissed, in pain, frustrated because every time it seems I get better I get knocked down with pain or fatigue in some way.  Right now I am pretty sick of this Fibro thing, the hip issue, and the back issue.  Someone make it go away!!!  They say that I will eventually need back surgery.  I won’t get pain relief from the sciatic nerve until I have the back surgery.  The nerve is being pinched so badly that all it knows to do is PAIN.  I also have the bulging disc, lots of arthritis, degenerative spurring, ventral flattening of the thecal sac, degenerative changes are most prominent at L4-L5 where there is a broad posterior and left foraminal disc protrusion with bony spurring.  There is moderate to severe left foraminal stenosis at L4-L5 with displacement and compression fo the exiting left L4 nerve root.  So……. sometime in the future I will be having back surgery.  They say this is the only thing that will help relieve my back and sciatica nerve pain.  I think I will try the shots for a while and when I just can’t stand it anymore – I wll schedule the surgery. 

So tell me – have you taken pain pills, pain shots, epidural injections for pain, steroid shots?  Tell me your experience I would love to hear it.

WARNING! Fibro Person Coming Your Way!!

September 25, 2012

“Fibro Colors” posted this today on Facebook and maybe here as well (not sure).  I can relate to this SO well.  I think some of it is due to Fibro Fog.  Not only do I trip over invisible things – I run into the same door knobs walking through the hall day after day (my arms show the bruises), and hit the same door frames with my arms.  If I am coming your way…… WATCH OUT!

Lovely Blog Award!

August 22, 2012

Lovely Blog Award

I was nominated for the LOVELY BLOG AWARD by painfighter.wordpress.com and I am so excited!!  I really needed the boost.  I have been having lots of pain and fatigue lately and haven’t felt like posting anything much less reading blogs.  Thanks so much painfighter!

The requirements of the Award are to mention who nominated me and link back to his/her blog, display the award image anywhere on my blog, reveal 7 things that you may not know about me, nominate 15 blogs for the award and tell them of the nomination (linking their blogs in this post) including a link back to this post.

7 things about me:

  1. My favorite color is blue.
  2. I love working in my flower bed.  This is my play time!
  3. I love watching crime shows especially “The First 48” on Netflix.
  4. I married my high school sweetheart and we have been married 32 years.
  5. My favorite foods are Pizza and Mexican food!
  6. I have 3 awesome sons, 2 wonderful brothers, and my sweet Dad and Mom have been married 55 years.
  7. I love country music.

My nominations are:

  1. http://modifiedgirl.wordpress.com/
  2. http://jimmersgirl.wordpress.com/
  3. http://walkingthroughpain.wordpress.com/
  4. http://myfibrostory.wordpress.com/
  5. http://staciegh.wordpress.com/
  6. http://fibromyalgianotebook.wordpress.com/
  7. http://myeverlastingcompanion.wordpress.com/
  8. http://theinvisiblef.wordpress.com/
  9. http://whatonearthisfibro.wordpress.com/
  10. http://auredhead.wordpress.com/
  11. http://couchedfibromum.wordpress.com/
  12. http://restoringmysoul.wordpress.com/
  13. http://dark2light.wordpress.com/
  14. http://fibromale.wordpress.com/
  15. http://25pillsaday.wordpress.com/

Congratulations everyone!!

 

 

Epidural Injection for Back Issues

August 7, 2012

Yesterday I had my 4th Lumbar Epidural Injection for my lower back pain.  I have had back pain for years but just thought it was part of my FIBRO.  My rheumatologist sent me a few months ago to have an MRI on my lower back and I find out I have:

-Degerative Disc & Facet Disease (especially L4 & L5)

-Protruding Disc with Bony Spirring

-Stenosis in L4 & L5 with Displacement and Compression of the Exiting Left L4 Nerve Root

Well….. isn’t that nice?  I say that sarcastically, but it is nIcE in a sTrAnGe way.  I had my series of 3 epidural injections with the last one in May.  I had SIGNIFICANT relief in one week!!  So I was able to get rid of some of my pain and at least the back pain has nothing to do with my severe fibromyalgia.  I was given steroid, short-term pain medicine, and long-term pain medicine.  They never know how long this will help an individual, but I have talked to a few that have gotten relief for 3 to 5 years.  My pain returned after 3 months, but it was a GLORIOUS 3 months with little back pain!  I was told that some patients may have to go every 3 months since the medication works differently in each patient.  The anesthesiologist told me that since I am back within the 3 months that it meant that I was getting most of my pain relief from the steroid.  He told me that I would be a good candidate for back surgery by reviewing my issues and that it could potentially help my issues for long-term.  I am not excited in the least about the possibility of having back surgery, but it would be so nice to FINALLY be able to “FIX” something.  I have found with Fibromyalgia there is not much that you can “FIX”.  I hear that there is research being done that could one day be able to help fibro patients and I welcome the day.  There are medicines that help some people with fibro, there are some people who have a touch of fibro, and there are people like me that take medicine that helps a wee bit but still suffer from constant pain.  So with all the stuff that I have going on with my lower back is kind of a “good thing”, because it is something that can be “FIXED”.

Isn’t it weird how perspective can change depending on how you are affected and the pain that you endure daily? 

Fibro Fog we are SICK AND TIRED OF YOU!!

July 27, 2012

I love this!! 

This was posted on facebook today by Fibromyalgia Network  https://www.facebook.com/#!/FibroNetwork

Fibro Fog (the brain stealing part of Fibromyalgia)

May 18, 2012

Fibro Fog is the symptom that I dislike the most that goes along with Fibromyalgia.  It takes a perfectly good brain and turns it into one that can’t seem to get the right connections to make it work properly.  I have fibro fog every minute of every day, but it has degrees.  Sometimes my brain will be affected very little and sometimes it is greatly affected.  For those of you without fibro – think of it as when you are driving your vehicle and it is a foggy morning.  Sometimes the fog in front of you is so dense that you can barely see the rode much less the car in front of you and you certainly can’t see anything on the side of the road.  Then sometimes there is a light fog and you can almost see fine but it clouds a little of your view.  This is how fibro fog is to us except it is inside our brain.  On a scale of 1 to 10 it can be anywhere on the scale and can change within a minute.  This makes us forget where we put things, forget important things that we were going to tell you, forget what we were doing, forget your name, and even forget what we were saying in the middle of a sentence.  We also can be in the middle of talking and just stop because we can’t think of the word we are trying to say.  When this happens to me it is like the wheels are turning in my brain but it just can’t make the connection to give me the right word.  This is VERY frustrating and sometimes embarrasing.  For example:  I could be talking about wanting to go get a pizza for dinner.  I am able to say “Why don’t we go get a …..” and I just stop and can’t think of the word, the thing that I was thinking about that I wanted to get for dinner.  Sometimes my family will try to guess the word, and then sometimes I describe the word.  So I would say “It is round, they put sauce and whatever stuff you want, and then put cheese on top”.  So my family can tell me the word that my brain can’t give me.  My family is used to this and when it happens I don’t get embarrased with them, but sometimes I still get frustrated.  Instead of getting frustrated I try to laugh it off with them, because it keeps me from getting frustrated.  When I am out in the world and this happens I normally say “fibro fog” “Sorry, I have Fibromyalgia”.  Most people know of this, but it is still embarrasing to me and very frustrating.  What do you do when this happens to you?

Once when I had a dentist appointment that is only 15 minutes away and in town I had one of my worst times with fibro fog.  We had used this dentist for years and I had been going and even taking my children to their appointments.  On this day it was an appointment for me for a 6 month teeth cleaning.  I started to the dentist and when I stopped my car I was parked in a parking lot for a local university.  I was sitting there wondering what I was doing there and where was it that I was going?  In a minute or two I remembered that I was on my way to the dentist and he was still 5 minutes away.  I called my husband at work and freaked out concerning what had just happened.  He wanted to come and get me but I said that I was now ok and I could make it on my own since the office was only 5 minutes away.  That incident was very scary.  When I am foggy and feel that I shouldn’t get out, I just call and cancel my appointments or call for my husband or mother-in-law to come and take me.  For a while when I would get out I would write down where I was going and what streets to take to get there.  Now, I am ok with jotting down the name of the business or the errand that I want to do and just thinking in my head what streets that I will take to get there.  When I am in more pain my fibro fog increases.  Does yours?

My husband and I are best friends and tell each other everything.  Well… now since I have fibro fog I forget to tell him things ….. even important things.  Sometimes I just totally forget about it for days or weeks and sometimes I ask him if I have told him something.  I am FOREVER saying to him and other family members “Have I already told you ……….”  It is something that has popped in my mind and I can’t remember if I have told them or not.  I have also lost so many memories of my life from childhood and on.  Sometimes I am talking with my parents and brothers when they will bring up something that happened while I was at home and I at least half of it I don’t remember at all.  This is true concerning my 32 years of marriage with my husband.  There are many, many things that I just don’t remember at all.  This is something that really bothers me, because family and memories are so precious and important to me.  Does fibro fog affect you in this way?

What I try to do to help me with fibro fog is make a list of things that I want to try to do that day.  This could be things in the house that I would like to do and/or things I need to do by running an errand.  I like to make a list and mark it off as I accomplish the task.  If I don’t get them all done then there is always tomorrow.  My list could be: take morning medicine, do laundry, load dishwasher, call #### for their birthday, go to grocery store to pick up bread & milk, take evening medicine.  There are things on the list that I HAVE to do and things on the list that have lower priority and could wait until tomorrow if my energy runs out or my pain becomes too great.

I would love to hear your stories about fibro fog or what your thoughts are on fibro fog .


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