Posted tagged ‘fatigue’

Frequent Nausea??

November 1, 2012

I am having a “fatigue monster” kind of day.  It is noon and I am just able to crawl out of bed.  My body started hurting so much that I had to get up for a while.  I am also sick to my stomach so I am making rice to eat for lunch.  My son, Tyler, brought me breakfast in bed this morning so I could take my medicine (Carnation Instant Breakfast was all I could get down) .  I have nausea frequently does anyone else have this problem?

Fatigue Monster

October 5, 2012

The BIG, BAD, Fatigue Monster has me again.  After having injections in my hip I got a virus that made me so sick for 4 days, then the fatigue monster took over and I can’t seem to shake it.  It has been a week since I first got sick with the virus and I am still so fatigued that I can barely get up much less STAY UP all day.  I have been sleeping 12 to 16 hours at a time and then taking a nap during the day as well.  I told my husband that I am so ready to get back to my “normal sick”.  With my chronic illness I am in constant pain and fatigue with numerous other symptoms and when I get an illness on top of that it is almost more than I can take.  I am even ready to get back to my “normal sick”.  I told my husband that it is weird to want to get back to ONLY being chronically ill.  Does that mean that I am ok with it or have accepted being chronically ill??  NO!!!  I still don’t like it one bit and I still haven’t accepted it, but it is what I am used to since I have been chronically ill with Severe Fibromyalgia for over 10 years now.  All I can say is the Fatigue Monster better watch out and go away soon or I will have my friends, family, and my fibro friends kick his butt!!

Fibromyalgia is a PAIN!!!

September 18, 2012

This is SO true!!  I haven’t had a second without pain in years.  Constant pain and fatigue is very draining on your body, mind, and soul.  I would give almost anything to have one day without pain and fatigue.  I am praying for a cure or at least medicine that will help me someday.  If you are out there struggling with fibromyalgia or another illness, just know that there are others out here that know what you are experiencing.  We are in this together and we need to encourage one another to live life to the fullest.

Blessings to you and your family.  Please feel free to comment.

So Fatigued I Can’t Open My Eyes

July 30, 2012

WHAT??  You can even open your eyes?  Sounds ridiculous doesn’t it?  Well…. yesterday was one of those days.  I started the day with lots of pain.  Pain in my hips, legs, shoulders, and hands.  I was in so much pain that I decided to take a pain pill.  It took longer for the pain pill to kick in but once it did it reduced my pain significantly.  I don’t know about you, but pain pills give me a spurt of energy – the type of energy that you just have to get up and do something.  When my spurt of energy started I decided to clean up my closet.  I took it easy but was able to make it look so nice.  Then the spurt of energy was gone.  Not only was it gone, but now EXTREME Fatigue kicked in.  When this happens I just have to go to bed.  I was in bed for the rest of the day and night.  I slept all night, but during the day yesterday I just napped off and on.  The fatigue was the extreme kind that I get periodically and I don’t even have the energy to open my eyes.  I had the tv on for some noise, but I could only lay with my eyes closed plastered to the bed.  I did some tossing and turning to try to stay comfortable since some of the pain returned as well.  It was the kind of fatigue if you have ever had it you know what I mean….. it was all I could do to breathe.  My sweet husband would come in to check on me periodically and I could hear him sneak in to not wake me.  I would say “I’m awake Sweetie, I am just still too tired to open my eyes”.  We would talk for a couple of minutes and then he would go on so I could rest.  I am still pretty fatigued today, but able to at least be up and actually HAVE MY EYES OPEN! 

The FATIGUE Monster has Attacked

July 20, 2012

Fatigue Monster

I went to bed early and was woken by my Mother-in-law calling or I don’t think I would be up now.  I am so fatigued I will be lying around and sleeping all day.  I slept 12 hours last night!  My record is:  I slept 23 hours one day about a year ago.  It was really weird to wake up and realize that I had missed a whole day.

Today I am walking around like a zombie from one of those zombie movies that I see advertised but never watch.  So just wanted you to know that the FATIGUE MONSTER got me last night and is determined to keep hold of me so far.  I may just punch him in the nose!!  🙂

Spread Fibromyalgia Awareness

June 27, 2012

Wishing for Some Good Days

June 14, 2012

I have been going through a bad time with my fibro the last few months.  I know some of it is due to Spring weather fronts.  I am so ready for some GOOD days.  I wish for you low pain days with lots of energy!

Why me??

May 31, 2012

If you are like me you have asked that question a hundred times.  Why do I have severe fibromyalgia, why do I have osteoarthritis, why do I have lower back issues,  why do I have constant pain, why do I have to be so fatigued, why did I have to quit my career at a company that I loved, why did this have to affect my family so much, why did this happen to me so my family has to worry about me, why do I have to have fibro fog, etc.

I mostly ask these questions when I have a high pain level that makes my fibro fog increase as well.  When this happens I can’t think clearly and I feel like the weight of this illness is crashing down around me.

When I ask myself these questions I normally think that if someone in our family had to have this illness and suffer so much – WELL, I would rather it be me that anyone else.  I wouldn’t want my husband or children have constant pain and fatigue along with a list of symptoms as long as my arm.  I wouldn’t want my parents, mother-in-law, or brothers to have this terrible, chronic illness.  So if I had to choose…. I would rather it be me.  I wouldn’t wish this disease on anyone!  I am trying to cope and accept this illness, but it is very difficult.  If only I could have one day without pain, or one hour without pain, or EVEN one minute without pain, I would give anything and give God the glory.  Fibro fog is the symptom that I hate the most, but the pain is all consuming and never stops.  I am always somewhere on the pain scale of 1 to 10 – I normally stay somewhere between a 3 to a 10.  A question that my husband asks me frequently throughout the day is “What is your pain level?”  It is like he is my caretaker, but he like to know so he can better help me at the time.  We have been married 32 years and he is a keeper.  He wants to help take care of me the best that he can and tells me frequently that he will always take care of me.  This is very comforting to know because there are people out there that are single or single parents that don’t have the awesome support that I have from my husband.  I don’t know how they cope.  I guess if you have to you just do it.

My husband and I talk frequently about why I have this illness.  We think that maybe it is so we can help others that are dealing with an illness or pain of any kind  in their life.  Sometimes it is all I can do to just take care of myself and then sometimes I am able to get out a little and I will run across an opportunity to help others.  I also blog and post on facebook to hopefully help others and in return it helps me as well.

Please leave a comment and let me know what you think about this and how you cope with the question “Why me?”

I wish for you a low pain day with extra energy! 

Fatigue

May 14, 2012

I am so fatigued today I can barely think.  Fatigue is ever-present in patients with fibromyalgia.  I have spent many days in bed, on the couch, frequent naps, etc.  When my boys were younger they used to call the couch Mama’s charger (like a phone charger).  I preferred to rest on the couch so I could be with them and they got used to me being on “my charger” frequently to get some energy back.  Fibro patients get pretty good at fooling others concerning hiding fatigue and pain.  Sometimes I just HAVE to go to bed and get rest, but normally I try to take frequent rests in a lounge chair, on the couch, etc.  I find that I do better if I try to push myself a little rather than just staying in bed.  I am in CONSTANT pain and never get a break from it.  My Rheumatologist told me a few years ago that it appeared that I had Severe Fibromyalgia and that I would probably continue to have substantial pain and fatigue.  He also said that I would get to where I could tolerate the pain better and I thought he was simply crazy!  I reminded him about 6 months ago what he told me and that at the time I thought he was crazy, because how could anyone tolerate so much pain….. but I do.

The other day I went out to lunch with a good friend and we stopped by a store to pick up some flowers.  After a few minutes I told her that I had to go home because I was starting to crash.  She knew I was tired by that time and asked if I was in pain.  I told her that I am always in pain and yes the pain was getting to be too much and I needed to go home.  She had no idea that I had been hurting the entire time at lunch and the few minutes at the store.  I mentioned earlier that I was “starting to crash”.  What I mean by this is my fatigue is getting too great and I am going to have to lay down very soon.  I don’t do much shopping and I have been out before by myself and had to call my Mother-in-law to come and get me.  We leave my car there while she takes me home and my husband and boys go back later to pick up my car.  Once I was at a local grocery store for a few items and I got to the check-out and realized that I was about to crash.  Luckily one of our sons worked at the grocery store at the time and I asked the manager if my son could take me home since I didn’t feel well and we lived close.  He very kindly let my son take me home and unload my groceries while I went to bed.  W-E-L-L   ……. I am about to crash now so I need to stop for the day and go get some rest.

I wish for you and low pain day and extra energy!

My Fibromyalgia Story updated due to FIBRO FOG

May 11, 2012

Well, this morning I was rereading my blog from yesterday and realized I had left out some KEY people in helping over the years as I have struggled in living with Severe Fibromyalgia.  This is due to Fibro Fog that clouds my mind and doesn’t let the necessary connections be made so I can think clearly, be able to complete sentences when I am talking, or remember even half of my past.  I will do a blog soon on Fibro Fog and talk indepth about it.

My mother-in-law, Nina, has helped with everything from activities with the boys or anything they wanted to do (including playing baseball with her in the backyard), cleaning my house, cooking us meals, etc.  She lives only a minute away and has been here in a minutes notice when I have needed her.  She helped us raise the boys when I was still able to work, she took them to spend the night with her on Friday nights to give me and my husband some quiet time, she has been a good friend that they can talk to about anything, and even though two of the boys are away at college they still have traditions that they continue to do with her.  To mention only a couple – One is spending the night with her on New Year’s Eve, staying up, and celebrating.  They still like to go and watch ball games with her at her house, and visit with her when they come home.  They have been doing these traditions since they were very little and enjoy time with her.  My mother-in-law has been a BIG part of our family throughout the years.  She is at an age that I should be taking care of her, although she is still very healthy and even still walks 2 miles a day.  So… with my illness she takes care of our family as needed.  Yesterday she came over and swept & mopped my kitchen floor!  She helps my husband and boys do the things that I am no longer able to do.  Praise God for her!

My parents, brothers, family, and friends have prayed for me throughout this ordeal.  They live about 4 hours away so they can’t just drive over when needed.  I am thankful for being able to talk to them on the phone to get comfort and for their continued prayers.

Our 3 boys stepped up to the plate to take care of whatever needed to be done (shopping, cooking, cleaning, etc)  We have always been very close and it was difficult when they started missing more and more time with me because I was in bed too fatigued to get up,  When I was awake they would come in my room to talk and be with me as much as they could.  At my worst we had one child, Kyle, living out of the home and two at home.  Kyle would come over and help us as needed.  Our middle son, Tyler, used to come home from school at lunch when he was 15 – 17 to make and bring me lunch to my bed, offer to do anything that I needed, kept me company, and also would tell me jokes or do/say something that would make me laugh.  He and our youngest son, Ryan, would come home after school to be with me and help around the house instead of going out with friends.  This is something I will forever be grateful for.  All three of them have grown into nice, kind-hearted young men.

Thanks for reading my blog and if you have Fibromyalgia may you have a low pain day with extra energy! 


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