Posted tagged ‘coping with a chronic illness’

Yes, I’m a Redneck

August 9, 2012

I had a terrible time with my back and fibro Tuesday night and Wednesday.  Once I have an Epidural Injection it feels better that day then inflammation sets in at the site about a day or so after and it causes extreme pain. The doctor told me the first time he gave me the epidural injection that with my fibro it was going to traumatize the site and it would last about a day.  He knew what he was talking about.  This is a normal thing for people with fibro.  If I stub my toe, hit my knee on something, fall, etc. it causes the pain to radiate from the site of the injury throughout my body.

Today my back pain is low and I enjoyed the morning outside watering and playing in my flower beds.  🙂   I praise God for each and every “good” day that I have.  My fatigue is better, but I always have to rest in the afternoon.  A “good” day for me is normally light housework, errands, or occasionally shopping in the morning, resting/sleeping in the afternoon, spending time with my family in the evening, and early to bed.

Oh, I learned something new this week.  A nurse asked me if I had an autoimmune disease and I told her “Yes, I have fibromyalgia”.  She said that she could tell by the redness on my neck (Yes, I’m a Redneck).   I told her that my dermatologist said it was Rosacea and I didn’t realize that it was related to my fibro.  Here is a link with information:  http://fatigue-cfs.com/Fibromyalgia/Rosacea-Fibromyalgia.html

So, I  am curious….. for those of you that have Fibromyalgia/Lupus do you also have Rosacea?

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So Fatigued I Can’t Open My Eyes

July 30, 2012

WHAT??  You can even open your eyes?  Sounds ridiculous doesn’t it?  Well…. yesterday was one of those days.  I started the day with lots of pain.  Pain in my hips, legs, shoulders, and hands.  I was in so much pain that I decided to take a pain pill.  It took longer for the pain pill to kick in but once it did it reduced my pain significantly.  I don’t know about you, but pain pills give me a spurt of energy – the type of energy that you just have to get up and do something.  When my spurt of energy started I decided to clean up my closet.  I took it easy but was able to make it look so nice.  Then the spurt of energy was gone.  Not only was it gone, but now EXTREME Fatigue kicked in.  When this happens I just have to go to bed.  I was in bed for the rest of the day and night.  I slept all night, but during the day yesterday I just napped off and on.  The fatigue was the extreme kind that I get periodically and I don’t even have the energy to open my eyes.  I had the tv on for some noise, but I could only lay with my eyes closed plastered to the bed.  I did some tossing and turning to try to stay comfortable since some of the pain returned as well.  It was the kind of fatigue if you have ever had it you know what I mean….. it was all I could do to breathe.  My sweet husband would come in to check on me periodically and I could hear him sneak in to not wake me.  I would say “I’m awake Sweetie, I am just still too tired to open my eyes”.  We would talk for a couple of minutes and then he would go on so I could rest.  I am still pretty fatigued today, but able to at least be up and actually HAVE MY EYES OPEN! 

My Awesome Day

July 2, 2012

Today I had the most awesome day!! I was so tired last night from the trip down to see my parents that I slept like a log. I woke up this morning and my pain level was low and I actually had a little energy. I helped my parents pick tomatoes, cucumbers, green beans, etc.

For lunch I ate cantaloupe and tomatoes that my parents grew. I just stuffed myself with them. So good! I am hurting more now and ready for a nap, but boy did I have fun this morning. Praising God for my good morning, time with my sweet parents, and the overcast sky so it wasn’t so hot. I wish for you a day of little to no pain and extra energy!!

Wishing for Some Good Days

June 14, 2012

I have been going through a bad time with my fibro the last few months.  I know some of it is due to Spring weather fronts.  I am so ready for some GOOD days.  I wish for you low pain days with lots of energy!

Why me??

May 31, 2012

If you are like me you have asked that question a hundred times.  Why do I have severe fibromyalgia, why do I have osteoarthritis, why do I have lower back issues,  why do I have constant pain, why do I have to be so fatigued, why did I have to quit my career at a company that I loved, why did this have to affect my family so much, why did this happen to me so my family has to worry about me, why do I have to have fibro fog, etc.

I mostly ask these questions when I have a high pain level that makes my fibro fog increase as well.  When this happens I can’t think clearly and I feel like the weight of this illness is crashing down around me.

When I ask myself these questions I normally think that if someone in our family had to have this illness and suffer so much – WELL, I would rather it be me that anyone else.  I wouldn’t want my husband or children have constant pain and fatigue along with a list of symptoms as long as my arm.  I wouldn’t want my parents, mother-in-law, or brothers to have this terrible, chronic illness.  So if I had to choose…. I would rather it be me.  I wouldn’t wish this disease on anyone!  I am trying to cope and accept this illness, but it is very difficult.  If only I could have one day without pain, or one hour without pain, or EVEN one minute without pain, I would give anything and give God the glory.  Fibro fog is the symptom that I hate the most, but the pain is all consuming and never stops.  I am always somewhere on the pain scale of 1 to 10 – I normally stay somewhere between a 3 to a 10.  A question that my husband asks me frequently throughout the day is “What is your pain level?”  It is like he is my caretaker, but he like to know so he can better help me at the time.  We have been married 32 years and he is a keeper.  He wants to help take care of me the best that he can and tells me frequently that he will always take care of me.  This is very comforting to know because there are people out there that are single or single parents that don’t have the awesome support that I have from my husband.  I don’t know how they cope.  I guess if you have to you just do it.

My husband and I talk frequently about why I have this illness.  We think that maybe it is so we can help others that are dealing with an illness or pain of any kind  in their life.  Sometimes it is all I can do to just take care of myself and then sometimes I am able to get out a little and I will run across an opportunity to help others.  I also blog and post on facebook to hopefully help others and in return it helps me as well.

Please leave a comment and let me know what you think about this and how you cope with the question “Why me?”

I wish for you a low pain day with extra energy! 


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