Posted tagged ‘Conditions and Diseases’

Fatigue Monster

October 5, 2012

The BIG, BAD, Fatigue Monster has me again.  After having injections in my hip I got a virus that made me so sick for 4 days, then the fatigue monster took over and I can’t seem to shake it.  It has been a week since I first got sick with the virus and I am still so fatigued that I can barely get up much less STAY UP all day.  I have been sleeping 12 to 16 hours at a time and then taking a nap during the day as well.  I told my husband that I am so ready to get back to my “normal sick”.  With my chronic illness I am in constant pain and fatigue with numerous other symptoms and when I get an illness on top of that it is almost more than I can take.  I am even ready to get back to my “normal sick”.  I told my husband that it is weird to want to get back to ONLY being chronically ill.  Does that mean that I am ok with it or have accepted being chronically ill??  NO!!!  I still don’t like it one bit and I still haven’t accepted it, but it is what I am used to since I have been chronically ill with Severe Fibromyalgia for over 10 years now.  All I can say is the Fatigue Monster better watch out and go away soon or I will have my friends, family, and my fibro friends kick his butt!!

Steroid Shots for Pain

September 30, 2012

I had steroid shots placed in the bursa area of my hip on Thursday to see if it would help with my hip pain.  I had developed pain with walking and it felt like it was bone on bone.  X-rays showed that my hip was ok.  The specialist put multiple steroid injections around the area of pain.  I could tell by the next day that it was helping, which was wonderful!!!  The drawbacks or side-effects of the shots were:  I was so wide awake that I only slept a total of 3 hours for 2 nights straight, my Fibro fog increased, the site was fairly swollen, bruised and painful, and it caused my Fibro to flare this weekend.  The GOOD news again is that it reduced the pain in my hip area so I no longer have the terrible pain when walking.  It is sad that so many things start flares in people with Fibromyalgia (meaning that their Fibro symptoms get worse).  Even treatment like steroid shots to help with hip pain start flares that make your Fibro worse.  I am thankful for any help I can get to reduce pain or increase energy, even at the cost of going through a Fibro Flare.  I don’t always…… but I want to try to look at the positives in my life.  May you be pain-free and have extra energy!

Fibromyalgia is a PAIN!!!

September 18, 2012

This is SO true!!  I haven’t had a second without pain in years.  Constant pain and fatigue is very draining on your body, mind, and soul.  I would give almost anything to have one day without pain and fatigue.  I am praying for a cure or at least medicine that will help me someday.  If you are out there struggling with fibromyalgia or another illness, just know that there are others out here that know what you are experiencing.  We are in this together and we need to encourage one another to live life to the fullest.

Blessings to you and your family.  Please feel free to comment.

I’m a Chronic Illness Warrior!!

September 12, 2012

Living a life of chronic illness can be really draining and it steals a lot of our lives.  I try to stay positive and push myself to do as much as I can.  Somedays my body just feels like staying in bed.  I feel like I have the flu, with fatigue, and severe pain.  I try to get up and do something – ANYTHING – to get out of bed.  I find this gives me a little energy, makes me feel better mentally, and I can help around the house as well.  Sometimes I water my flowers, sometimes “play in my flowerbed”, do a little housework, visit my Mother-in-Law, or have lunch with a friend.  I haven’t been able to get out and shop recently due to my back and hip issues, so I feel a little home bound.  Let’s pray that we all have less pain and extra energy!!  Blessings!

So Fatigued I Can’t Open My Eyes

July 30, 2012

WHAT??  You can even open your eyes?  Sounds ridiculous doesn’t it?  Well…. yesterday was one of those days.  I started the day with lots of pain.  Pain in my hips, legs, shoulders, and hands.  I was in so much pain that I decided to take a pain pill.  It took longer for the pain pill to kick in but once it did it reduced my pain significantly.  I don’t know about you, but pain pills give me a spurt of energy – the type of energy that you just have to get up and do something.  When my spurt of energy started I decided to clean up my closet.  I took it easy but was able to make it look so nice.  Then the spurt of energy was gone.  Not only was it gone, but now EXTREME Fatigue kicked in.  When this happens I just have to go to bed.  I was in bed for the rest of the day and night.  I slept all night, but during the day yesterday I just napped off and on.  The fatigue was the extreme kind that I get periodically and I don’t even have the energy to open my eyes.  I had the tv on for some noise, but I could only lay with my eyes closed plastered to the bed.  I did some tossing and turning to try to stay comfortable since some of the pain returned as well.  It was the kind of fatigue if you have ever had it you know what I mean….. it was all I could do to breathe.  My sweet husband would come in to check on me periodically and I could hear him sneak in to not wake me.  I would say “I’m awake Sweetie, I am just still too tired to open my eyes”.  We would talk for a couple of minutes and then he would go on so I could rest.  I am still pretty fatigued today, but able to at least be up and actually HAVE MY EYES OPEN! 

Fibro Fog we are SICK AND TIRED OF YOU!!

July 27, 2012

I love this!! 

This was posted on facebook today by Fibromyalgia Network  https://www.facebook.com/#!/FibroNetwork

Fibromyalgia Pain

June 12, 2012

I have constant pain from fibromyalgia.  Life with constant pain causes many emotions, thoughts, and trials.  I have been in constant pain for over 10 years now.  I have thought before that I would give almost anything to have just one day without pain….. no, I would even take just one hour without pain….. I would even settle for just ONE MINUTE without pain.  Pain is a terrible thing to deal with every second of the day.  I try to do many things to help my pain and to try to take my mind off of the pain.  Some of these are writing a blog, connecting with distant relatives on facebook, water therapy, working in my flower bed, going on an occassional lunch date with a friend, etc.  I miss the person that I used to be.  The Ginger without pain.  I was without pain and didn’t have to think about pain.  I am a different person now.  Sometimes when you see me I may not look like I am hurting, but the pain is there eating away at me.  Just like others with chronic pain, I am pretty good at hiding it and putting a smile on my face, but the monster “PAIN” is still there.  Sometimes it is so great that I have to go to bed or I have to take a pain pill.  I don’t like taking pain pills.  I don’t want to get hooked on pain pills or get to the point that they no longer work for me.  When I take them they only take the edge off of the pain, but it makes it more bearable for me tolerate.  My pain now never gets below a 3 and goes to a 10.  How nice it would be to even get to 1 or 2 on the pain scale.  Hopefully there will be something to help me down the road.  (By the way when I talk about the pain scale – I had to revise mine a few years ago because my pain would go to a 15.  I no longer have pain less than an 8 on my old pain scale – which is now a 3 on my new pain scale.)  I hope and pray for relief from my new life – the one of  constant pain.  The thing I concentrate on is living my life to the fullest.

Why me??

May 31, 2012

If you are like me you have asked that question a hundred times.  Why do I have severe fibromyalgia, why do I have osteoarthritis, why do I have lower back issues,  why do I have constant pain, why do I have to be so fatigued, why did I have to quit my career at a company that I loved, why did this have to affect my family so much, why did this happen to me so my family has to worry about me, why do I have to have fibro fog, etc.

I mostly ask these questions when I have a high pain level that makes my fibro fog increase as well.  When this happens I can’t think clearly and I feel like the weight of this illness is crashing down around me.

When I ask myself these questions I normally think that if someone in our family had to have this illness and suffer so much – WELL, I would rather it be me that anyone else.  I wouldn’t want my husband or children have constant pain and fatigue along with a list of symptoms as long as my arm.  I wouldn’t want my parents, mother-in-law, or brothers to have this terrible, chronic illness.  So if I had to choose…. I would rather it be me.  I wouldn’t wish this disease on anyone!  I am trying to cope and accept this illness, but it is very difficult.  If only I could have one day without pain, or one hour without pain, or EVEN one minute without pain, I would give anything and give God the glory.  Fibro fog is the symptom that I hate the most, but the pain is all consuming and never stops.  I am always somewhere on the pain scale of 1 to 10 – I normally stay somewhere between a 3 to a 10.  A question that my husband asks me frequently throughout the day is “What is your pain level?”  It is like he is my caretaker, but he like to know so he can better help me at the time.  We have been married 32 years and he is a keeper.  He wants to help take care of me the best that he can and tells me frequently that he will always take care of me.  This is very comforting to know because there are people out there that are single or single parents that don’t have the awesome support that I have from my husband.  I don’t know how they cope.  I guess if you have to you just do it.

My husband and I talk frequently about why I have this illness.  We think that maybe it is so we can help others that are dealing with an illness or pain of any kind  in their life.  Sometimes it is all I can do to just take care of myself and then sometimes I am able to get out a little and I will run across an opportunity to help others.  I also blog and post on facebook to hopefully help others and in return it helps me as well.

Please leave a comment and let me know what you think about this and how you cope with the question “Why me?”

I wish for you a low pain day with extra energy! 

Do What Makes You Happy!

May 25, 2012

Life is so busy and can become complicated especially if you have a chronic illness.  I USED to want my house tidy and clean, but I have learned to take care of myself, DO WHAT MAKES ME HAPPY, and then do what I can in the house.  My husband helps as well.  I have plenty that I could do today in the house, but I woke up at 2:00 this morning in pain and couldn’t sleep after that.  At 5:00 when my husband woke up we went outside, sat in our comfortable lounge chairs, enjoyed some coffee, and talked until he had to get ready to go to work.  Then….. I did one of the things that I enjoy so much and is even relaxing.  I watered my flowers, shrubs, and veggies.  Yes, this is something that is enjoyable to me!  Other things I love to do that “make me happy” – just being with my husband and boys, weeding my flower and veggie beds, pool therapy, calling to check on  my Dad & Mom, talking with friends/family or going to lunch, talking with my mother-in-law, making a special dessert for my family, spending time with the Lord,  sending a card or emailing friends that are in another state, getting a massage, going for a manicure, getting a pedicure with a unique design, visiting my parents and family in my hometown, looking at family photos, staying connected with family/friends on Facebook, listening to country music, having a cook-out with all of the neighbors, getting a call from my brothers, and many other things.

My point is life is too short and we try to do too many things and by doing this we sometimes miss out on the important things in life.  Also with a chronic illness I never know from one minute to the next on when I will be too sick to take advantage of doing the things that make me happy.  I have found that sometimes when I am in great pain instead of going to bed or resting on the couch like my body seems to want to do I can go outside and spend time watering or weeding.  Because it is something that I love to do –  it sometimes helps me push through the worst of the pain.  This doesn’t always work but it is worth a try.

For the chronic pain sufferers  – I hope for you a low pain day with extra energy.  Remember, DO WHAT MAKES YOU HAPPY!!

Skin Issues with Fibromyalgia

May 23, 2012

I wanted to share this since I just talked about it Monday.  The information below was posted by the Fibromyalgia Network.

http://www.fmnetnews.com/free-articles/enews-alert-samples/skin-sensitivities

Research on Fibromyalgia Skin Sensitivities
Does your skin burn or itch? Do you frequently get rashes that just won’t go away? According to Charles Lapp, M.D., who treats hundreds of people with fibromyalgia at his center in Charlotte, NC, “fibromyalgia-related rashes occur in the majority of patients that I see.” Lapp, along with another experienced physician, Daniel Wallace, M.D., of UCLA, agrees that skin sensitivities are common in fibro. So what is it about your skin and its related tissues that make them so sensitive? Studies during the past 20 years may help explain why your skin is such a nagging issue. •Xavier Caro, M.D., of Northridge, CA, performed most of the early research in this field to show that there was a high concentration of immune-reactive proteins in the area just beneath the surface of the skin. He theorized that these proteins had escaped through larger-than-normal pores in the blood vessels supplying the skin, and they could be a source of immunological reactions because the body would view them as “foreign” substances in the skin tissues (i.e., it is not normal for these proteins to pass through the blood vessels). •Although Caro’s findings point to an immunological disruption in the skin of patients with fibromyalgia, they are commonly seen in conditions where the microcirculation (the capillaries and small blood vessels) has undergone changes. Haiko Sprott, M.D., of Switzerland, reported that the number of capillaries in the skin of fibromyalgia patients were significantly reduced and irregular in shape. The amount of blood flow to the peripheral tissues (such as the skin) was substantially reduced as well. •A Swedish team found a fourfold increase in the number of mast cells in the skin of fibromyalgia patients. Mast cells, part of the immune system, are filled with many chemicals such as histamine and cytokines (both can cause painful irritation in the surrounding tissues when released from the mast cells). Neurological impulses can cause mast cells to dump their contents (degranulate), eliciting a neuro-immune response. The authors of this study point out that, perplexing, the mast cells are degranulated in areas where the skin looks “normal.” In other words, the surface of the skin does not convey the immunological, neurological, and blood flow abnormalities that are occurring in the tissues below!
Taken together, the above findings may help explain why you are often troubled with rashes that are difficult-to-treat. Even if the skin appears normal on the surface, there is a lot going on beneath the surface to fuel your skin irritations and itchy/burning sensations.


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