Archive for the ‘Skin Issues’ category

WARNING! Fibro Person Coming Your Way!!

September 25, 2012

“Fibro Colors” posted this today on Facebook and maybe here as well (not sure).  I can relate to this SO well.  I think some of it is due to Fibro Fog.  Not only do I trip over invisible things – I run into the same door knobs walking through the hall day after day (my arms show the bruises), and hit the same door frames with my arms.  If I am coming your way…… WATCH OUT!

Yes, I’m a Redneck

August 9, 2012

I had a terrible time with my back and fibro Tuesday night and Wednesday.  Once I have an Epidural Injection it feels better that day then inflammation sets in at the site about a day or so after and it causes extreme pain. The doctor told me the first time he gave me the epidural injection that with my fibro it was going to traumatize the site and it would last about a day.  He knew what he was talking about.  This is a normal thing for people with fibro.  If I stub my toe, hit my knee on something, fall, etc. it causes the pain to radiate from the site of the injury throughout my body.

Today my back pain is low and I enjoyed the morning outside watering and playing in my flower beds.  🙂   I praise God for each and every “good” day that I have.  My fatigue is better, but I always have to rest in the afternoon.  A “good” day for me is normally light housework, errands, or occasionally shopping in the morning, resting/sleeping in the afternoon, spending time with my family in the evening, and early to bed.

Oh, I learned something new this week.  A nurse asked me if I had an autoimmune disease and I told her “Yes, I have fibromyalgia”.  She said that she could tell by the redness on my neck (Yes, I’m a Redneck).   I told her that my dermatologist said it was Rosacea and I didn’t realize that it was related to my fibro.  Here is a link with information:

So, I  am curious….. for those of you that have Fibromyalgia/Lupus do you also have Rosacea?

Fatigue & a Little about Raynaud’s Syndrome

July 21, 2012

Today the FATIGUE MONSTER still has me but I am out of bed doing a little here and there. When I am in bed too long my body hurts all the way down to my bones. I love life and determined to make the best of it. The major symptoms of fibromyalgia is pain and fatigue. Some patients have constant pain like I experience. The following is from the National Fibromyalgia Association’s website. It lists some of the other symptoms of fibromyalgia. I want to talk about one today (Raynaud’s Syndrome).

“Other symptoms/overlapping conditions
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud’s Syndrome, neurological symptoms, and impaired coordination.”

Raynaud’s Syndrome is where your hands and feet (sometimes the tip of your nose or ears) feel numb and bone-chilling cold. What causes this is the smaller arteries that supply blood to your skin narrow, limiting blood circulation to these areas. I have this and it happens more to me when temperatures are cool. My hands and feet get so cold that they hurt and wearing gloves/socks doesn’t seem to help. For me it is periodically during the day so I am constantly putting on or taking off gloves in the winter. Seems like 100 times a day. My fingers and toes turn white then a bluish color at times. I also use a heating pad to help.

Blessings to you!


The FATIGUE Monster has Attacked

July 20, 2012

Fatigue Monster

I went to bed early and was woken by my Mother-in-law calling or I don’t think I would be up now.  I am so fatigued I will be lying around and sleeping all day.  I slept 12 hours last night!  My record is:  I slept 23 hours one day about a year ago.  It was really weird to wake up and realize that I had missed a whole day.

Today I am walking around like a zombie from one of those zombie movies that I see advertised but never watch.  So just wanted you to know that the FATIGUE MONSTER got me last night and is determined to keep hold of me so far.  I may just punch him in the nose!!  🙂

Fibro this Week

July 6, 2012

God granted me a pretty good week while visiting with my family in my home town. Praise the Lord! I have still been in constant pain but the pain has mostly been low except in the evening. Then I am in terrible pain, but soon it is time for my sleeping medicine so I don’t have to suffer too many hours. I have also been having the sciatic nerve pain in my left leg. It went away after I had the Lumbar Epidural Injections. It has been a few weeks since I took the last injection and it helped my lower back pain and took away my sciatic nerve pain. This pain is back and my back pain gets bad at times, but it is nothing like the pain I was experiencing. Pain sufferers – I wish for you a low pain day with EXTRA energy!

My Awesome Day

July 2, 2012

Today I had the most awesome day!! I was so tired last night from the trip down to see my parents that I slept like a log. I woke up this morning and my pain level was low and I actually had a little energy. I helped my parents pick tomatoes, cucumbers, green beans, etc.

For lunch I ate cantaloupe and tomatoes that my parents grew. I just stuffed myself with them. So good! I am hurting more now and ready for a nap, but boy did I have fun this morning. Praising God for my good morning, time with my sweet parents, and the overcast sky so it wasn’t so hot. I wish for you a day of little to no pain and extra energy!!

Spread Fibromyalgia Awareness

June 27, 2012

Disability for Fibromyalgia

June 26, 2012

Insurance companies are behind the times in classifying Severe Fibromyalgia as a disability.  In the cases I know, including my own, insurance companies (at least in the US) don’t like to pay disability to people suffering with Severe Fibromyalgia and do everything they can to deny cases.  I had worked for a large credit union for almost 20 years and disability insurance was included in our benefits.  We had good benefits and I had no idea that I would someday need to apply for disability.  When I realized that I could no longer work due to my illness I was too sick for it to really register and be able to wrap my mind around it.  My rheumatologist told me that this would be my last day of work, that I was one of the people who had Severe Fibromyalgia, and  it appeared that I wouldn’t be able to work for the rest of my life.  At first the insurance company approved my claim, then denied it, then would  approve it about every 3 to 6 months.  I eventually needed to get an attorney to help me ” jump through all the hoops” to try to satisfy the insurance company.  I went to numerous doctors that they requested, completed lots of paperwork, sent information that was requested, etc.  This was the first attorney that I ever had in my life.  He continued to send information or ask me to do so when needed for the first 2 years.  The agreement was that he was only paid when the insurance company would pay my benefits.  Then when it looked like they were no longer going to pay –  the attorney called me in for a meeting and told me that he was going to start charging me a fee since it didn’t look like the insurance company was going to continue paying benefits.  At the meeting I was stunned because it was a good law firm in a large city and they told me up front that they would take care of my case and only take a percentage if the insurance company paid.  They never said that  if the insurance company didn’t pay that they would ask me for money!  I sat there in disbelief.  I reminded him of the agreement and I also asked to look at the file that he had on my case.  Right on the top was a letter from the insurance company stating that they were sending a lump sum of money for the last X amount of months and all they needed was to know where to send the money.  I read it to him and asked “what does this mean?” like I didn’t know.  He said “I must have overlooked that and just had it filed, so he let me know that he would continue to help me with my case since the firm would be getting additional money”.  I wanted to tell him off, but that is not me so I signed what I needed to and left the law firm knowing that I would never return again.  I searched again for someone to help me with my disability and got a referral for one in another city, so I used that attorney for the rest of my 4 years fighting for my disability from the insurance company.  Sadly enough, I only received 2 years of disability pay from the insurance company that was supposed to pay me 66 2/3 of my income until retirement due to my disability.   When I had to quit my career I also applied for Social Security Disability Income which would have reduced the disability income of the insurance company by the amount that Social Security would pay, so I would end up with 66 2/3 of my salary just like what was supposed to happen.  Within 2 months, which is relatively fast, I was approved for Social Security Disability.  I think I was approved for it so fast because I had so much information and history with doctors and specialists and because I did everything possible to be able to continue working.  It was very apparent that I was disabled.   I am VERY  grateful for my Social Security Disability income, but is a “drop in the bucket” of the amount that I should be receiving from my former employers insurance company.

So….. because my husband and I both worked and we were a two income family, when I had to stop working due to my illness we lost HALF of our income.  We had retirement saved that was obviously designated for our retirement, but we still had a young family and the bills to pay so we used our retirement money to pay off some of our bills and used the rest to supplement our income until my “retirement income” got permanently approved (which it never did with the insurance company).  My husband has a good paying job, but with it and my small Social Security Disability income our family of five has had to scrape by payday to payday to survive.  Most years we can’t even afford a meager vacation.  Two of our boys are now in college and one in high school.  We make a little too much money for our boys to qualify for help from the government on paying for college, so they have had to take out student loans to cover the cost and we help them with a little spending money.  My husband and I planned to pay for college for them, but now our boys will have to come out of college with large student loan debts hanging over their head.  When retirement comes for me and my husband we will have very little retirement money so I hope that Social Security Retirement holds out.  If the Social Security Retirement System survives in the US and we actually get retirement income it will continue to be a pay check to pay check kind of life.

The insurance company knew that I was disabled and even admitted this over the phone, they continued to say that they wanted an X-ray or blood test to PROVE that I had Severe Fibromyalgia.  They also admitted to me that they knew that no X-ray or blood test would show the results that they requested.  Even after 5 years of being disabled and having jumped through all the hoops that the insurance company of my employer asked – this is still a bitter pill to swallow.  I pray for peace in this area of my life.

I obviously feel like I got a raw deal, but I don’t let this steal my happiness.  I feel that I need to tell my story to try to help others going through the same thing.

My husband and I were high school sweethearts and are still head over hills in love with each other.  We have 3 wonderful boys.  They are loving, kind-hearted, hard-working, down-to-earth young men.  We also have loads of extended family that we love dearly and treasure our time together.  We are blessed!  This is my life and I want to continue living life to the fullest!! 

I wish for you a low pain day with extra energy!

Skin Issues with Fibromyalgia

May 23, 2012

I wanted to share this since I just talked about it Monday.  The information below was posted by the Fibromyalgia Network.

Research on Fibromyalgia Skin Sensitivities
Does your skin burn or itch? Do you frequently get rashes that just won’t go away? According to Charles Lapp, M.D., who treats hundreds of people with fibromyalgia at his center in Charlotte, NC, “fibromyalgia-related rashes occur in the majority of patients that I see.” Lapp, along with another experienced physician, Daniel Wallace, M.D., of UCLA, agrees that skin sensitivities are common in fibro. So what is it about your skin and its related tissues that make them so sensitive? Studies during the past 20 years may help explain why your skin is such a nagging issue. •Xavier Caro, M.D., of Northridge, CA, performed most of the early research in this field to show that there was a high concentration of immune-reactive proteins in the area just beneath the surface of the skin. He theorized that these proteins had escaped through larger-than-normal pores in the blood vessels supplying the skin, and they could be a source of immunological reactions because the body would view them as “foreign” substances in the skin tissues (i.e., it is not normal for these proteins to pass through the blood vessels). •Although Caro’s findings point to an immunological disruption in the skin of patients with fibromyalgia, they are commonly seen in conditions where the microcirculation (the capillaries and small blood vessels) has undergone changes. Haiko Sprott, M.D., of Switzerland, reported that the number of capillaries in the skin of fibromyalgia patients were significantly reduced and irregular in shape. The amount of blood flow to the peripheral tissues (such as the skin) was substantially reduced as well. •A Swedish team found a fourfold increase in the number of mast cells in the skin of fibromyalgia patients. Mast cells, part of the immune system, are filled with many chemicals such as histamine and cytokines (both can cause painful irritation in the surrounding tissues when released from the mast cells). Neurological impulses can cause mast cells to dump their contents (degranulate), eliciting a neuro-immune response. The authors of this study point out that, perplexing, the mast cells are degranulated in areas where the skin looks “normal.” In other words, the surface of the skin does not convey the immunological, neurological, and blood flow abnormalities that are occurring in the tissues below!
Taken together, the above findings may help explain why you are often troubled with rashes that are difficult-to-treat. Even if the skin appears normal on the surface, there is a lot going on beneath the surface to fuel your skin irritations and itchy/burning sensations.

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