“Fibro Colors” posted this today on Facebook and maybe here as well (not sure). I can relate to this SO well. I think some of it is due to Fibro Fog. Not only do I trip over invisible things – I run into the same door knobs walking through the hall day after day (my arms show the bruises), and hit the same door frames with my arms. If I am coming your way…… WATCH OUT!
I had a terrible time with my back and fibro Tuesday night and Wednesday. Once I have an Epidural Injection it feels better that day then inflammation sets in at the site about a day or so after and it causes extreme pain. The doctor told me the first time he gave me the epidural injection that with my fibro it was going to traumatize the site and it would last about a day. He knew what he was talking about. This is a normal thing for people with fibro. If I stub my toe, hit my knee on something, fall, etc. it causes the pain to radiate from the site of the injury throughout my body.
Today my back pain is low and I enjoyed the morning outside watering and playing in my flower beds. 🙂 I praise God for each and every “good” day that I have. My fatigue is better, but I always have to rest in the afternoon. A “good” day for me is normally light housework, errands, or occasionally shopping in the morning, resting/sleeping in the afternoon, spending time with my family in the evening, and early to bed.
Oh, I learned something new this week. A nurse asked me if I had an autoimmune disease and I told her “Yes, I have fibromyalgia”. She said that she could tell by the redness on my neck (Yes, I’m a Redneck). I told her that my dermatologist said it was Rosacea and I didn’t realize that it was related to my fibro. Here is a link with information: http://fatigue-cfs.com/Fibromyalgia/Rosacea-Fibromyalgia.html
So, I am curious….. for those of you that have Fibromyalgia/Lupus do you also have Rosacea?
Today the FATIGUE MONSTER still has me but I am out of bed doing a little here and there. When I am in bed too long my body hurts all the way down to my bones. I love life and determined to make the best of it. The major symptoms of fibromyalgia is pain and fatigue. Some patients have constant pain like I experience. The following is from the National Fibromyalgia Association’s website. It lists some of the other symptoms of fibromyalgia. I want to talk about one today (Raynaud’s Syndrome).
“Other symptoms/overlapping conditions
Additional symptoms may include: irritable bowel and bladder, headaches and migraines, restless legs syndrome (periodic limb movement disorder), impaired memory and concentration, skin sensitivities and rashes, dry eyes and mouth, anxiety, depression, ringing in the ears, dizziness, vision problems, Raynaud’s Syndrome, neurological symptoms, and impaired coordination.”
Raynaud’s Syndrome is where your hands and feet (sometimes the tip of your nose or ears) feel numb and bone-chilling cold. What causes this is the smaller arteries that supply blood to your skin narrow, limiting blood circulation to these areas. I have this and it happens more to me when temperatures are cool. My hands and feet get so cold that they hurt and wearing gloves/socks doesn’t seem to help. For me it is periodically during the day so I am constantly putting on or taking off gloves in the winter. Seems like 100 times a day. My fingers and toes turn white then a bluish color at times. I also use a heating pad to help.
Blessings to you!
I went to bed early and was woken by my Mother-in-law calling or I don’t think I would be up now. I am so fatigued I will be lying around and sleeping all day. I slept 12 hours last night! My record is: I slept 23 hours one day about a year ago. It was really weird to wake up and realize that I had missed a whole day.
Today I am walking around like a zombie from one of those zombie movies that I see advertised but never watch. So just wanted you to know that the FATIGUE MONSTER got me last night and is determined to keep hold of me so far. I may just punch him in the nose!! 🙂
God granted me a pretty good week while visiting with my family in my home town. Praise the Lord! I have still been in constant pain but the pain has mostly been low except in the evening. Then I am in terrible pain, but soon it is time for my sleeping medicine so I don’t have to suffer too many hours. I have also been having the sciatic nerve pain in my left leg. It went away after I had the Lumbar Epidural Injections. It has been a few weeks since I took the last injection and it helped my lower back pain and took away my sciatic nerve pain. This pain is back and my back pain gets bad at times, but it is nothing like the pain I was experiencing. Pain sufferers – I wish for you a low pain day with EXTRA energy!
Today I had the most awesome day!! I was so tired last night from the trip down to see my parents that I slept like a log. I woke up this morning and my pain level was low and I actually had a little energy. I helped my parents pick tomatoes, cucumbers, green beans, etc.
For lunch I ate cantaloupe and tomatoes that my parents grew. I just stuffed myself with them. So good! I am hurting more now and ready for a nap, but boy did I have fun this morning. Praising God for my good morning, time with my sweet parents, and the overcast sky so it wasn’t so hot. I wish for you a day of little to no pain and extra energy!!
I wanted to share this since I just talked about it Monday. The information below was posted by the Fibromyalgia Network.
http://www.fmnetnews.com/free-articles/enews-alert-samples/skin-sensitivities
Research on Fibromyalgia Skin Sensitivities
Does your skin burn or itch? Do you frequently get rashes that just won’t go away? According to Charles Lapp, M.D., who treats hundreds of people with fibromyalgia at his center in Charlotte, NC, “fibromyalgia-related rashes occur in the majority of patients that I see.” Lapp, along with another experienced physician, Daniel Wallace, M.D., of UCLA, agrees that skin sensitivities are common in fibro. So what is it about your skin and its related tissues that make them so sensitive? Studies during the past 20 years may help explain why your skin is such a nagging issue. •Xavier Caro, M.D., of Northridge, CA, performed most of the early research in this field to show that there was a high concentration of immune-reactive proteins in the area just beneath the surface of the skin. He theorized that these proteins had escaped through larger-than-normal pores in the blood vessels supplying the skin, and they could be a source of immunological reactions because the body would view them as “foreign” substances in the skin tissues (i.e., it is not normal for these proteins to pass through the blood vessels). •Although Caro’s findings point to an immunological disruption in the skin of patients with fibromyalgia, they are commonly seen in conditions where the microcirculation (the capillaries and small blood vessels) has undergone changes. Haiko Sprott, M.D., of Switzerland, reported that the number of capillaries in the skin of fibromyalgia patients were significantly reduced and irregular in shape. The amount of blood flow to the peripheral tissues (such as the skin) was substantially reduced as well. •A Swedish team found a fourfold increase in the number of mast cells in the skin of fibromyalgia patients. Mast cells, part of the immune system, are filled with many chemicals such as histamine and cytokines (both can cause painful irritation in the surrounding tissues when released from the mast cells). Neurological impulses can cause mast cells to dump their contents (degranulate), eliciting a neuro-immune response. The authors of this study point out that, perplexing, the mast cells are degranulated in areas where the skin looks “normal.” In other words, the surface of the skin does not convey the immunological, neurological, and blood flow abnormalities that are occurring in the tissues below!
Taken together, the above findings may help explain why you are often troubled with rashes that are difficult-to-treat. Even if the skin appears normal on the surface, there is a lot going on beneath the surface to fuel your skin irritations and itchy/burning sensations.
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