Archive for the ‘Fibromyalgia’ category

Back Surgery

November 25, 2013

I had back surgery on October 31st and it was a very scary time, but God kept me safe and saw me through.  During surgery I had a severe asthma attack so they had to stop surgery.  I was kept in recovery about 10 hours due to a very low oxygen level, breathing issues, heavy chest, they thought I might even have a blood clot in my lungs, etc.  During this time I felt like I was dying and by the look on the faces of my doctor and nurse – they were having the same kind of thoughts.  I have since returned to see my neurosurgeon and he told me of how concerned he was and had bad that I scared him.  My neurosurgeon is an awesome, caring person and I had the most wonderful recovery nurse that stayed with me during the entire 10 hour ordeal – – even going with me for nuclear test, scans, other tests.  She held my hand many times and I told her that I felt like I was dying and I thought if I closed my eyes that I wouldn’t wake up.  I could actually feel the life fading out of me.   … I prayed for God to spare me to be with my family and see my boys grow up and have families of their own.  My neurosurgeon would come and be with me in recovery between other surgeries.  I thought to myself “so this is what it feels like to be dying”.  After an hour or so of being in recovery the nurse said she was going to make a BIG exception and go get my husband to be with me as well.  She said the hospital doesn’t allow any family to come in recovery, but she felt that this one time she needed to make an exception.  It was nice to have my sweet hubby for support as I fought for my life.  The recovery room was a very large rectangular room with surgery patients lined up on each side but with plenty of room for nurses and doctors moving about.  In the mean time my husband, Joe, had called for prayer from church groups, family, and friends. During the time of my ordeal I did think – well, I guess I will get to see Jesus, Lisa, Paul, Uncle Merle, Aunt Sue, Aunt Virginia, Aunt Pat, Aunt Annie, and many other friends and family that have passed on. I went through many tests, scans, and an hour of doing a nuclear test to see if a blood clot had gone to my lungs.  During the test I started to slowly feel better and started having thoughts that I might even be able to stay on this earth a little longer.  Within the next hour my oxygen level went back to normal, the heaviness of feeling like an elephant was sitting on my chest went away, and I knew that God had answered prayers.  They never found what caused some of my issues during and after surgery – God just simply made it disappear.  I praise God that I am alive and able to be with my family.  I am on the mend, I no longer have constant sciatic nerve pain, numbness, and tingling in my right leg and foot.  Praise God!  My Fibromyalgia has flared as expected after surgery, but that is something that I deal with on a daily basis.  Blessing friends!

I’m BACK!!!

April 10, 2013

frog jumping

I haven’t been on in a while.  To make a long story short.  I have had a lot of fibro pain and fatigue to the point of having in bed days.  Our middle son, who is 21, got both hands burned at work when a torch exploded.  It was a large fireball that singed his hair, eyebrows, eyelashes, nose hairs, BUT God spared his face.  The only thing burned was his hands.  I have never been around anyone that had been burned and it was horrible.  Even with pain pills he was in so much pain.  We had to put creams on and wrap his hands multiple times each day.  The entire family pitched in to help feed him, doctor his hands, give him drinks, and even give him sponge baths out of the kitchen sink.  It totally broke my heart.  The good thing is we have one of the best burn hospitals within 30 minutes of our home and he had a wonderful doctor.  We took him for treatment weekly and he was burned so bad that he had to have a skin graft to one hand and it is doing wonderful.  He is back to work, pain-free, and they say he will have a complete recovery.  Praise God!  I am glad to be back with my friends and look forward to hearing from you and reading your posts.

On another note – our weather has been crazy lately with numerous storms, weather fronts, etc.  Yesterday it was 80 degrees and then last night it got down to 30 degrees.  Talk about crazy!  No wonder I have been hurting so much.  Yesterday I picked some asparagus, admired my flowers coming up, saw zillions of blooms on my strawberries, and noticed the peach tree was full of blooms.  Today my peach tree has ice on the limbs and it looks sad with it limbs under the stress of the rain that froze on it.  Last night we put trash bags around my patio banana, lemon, lime, and orange trees.  We put buckets, tubs, pails, anything we could find to cover as much as we could to try to save it from the cold air.  The ground is wet and it is supposed to be 28 degrees tonight and then after that I think it will go back to our normal April weather.  It is so weird to get a winter storm in April here in Oklahoma.

Blessings to you!

Precious Sleep

January 30, 2013

I feel rested and so much better.  I slept 8 hours last night and 5 the night before.  Hopefully I am getting back to my “normal” sleep pattern.  Even though the weather change has me achy today it is much better to handle with enough sleep.  I wish you a blessed day!!

Where Did my Sleep Go?

January 28, 2013

zombie

 

I have only been sleeping 3 to 4 hours a night for the last week and not sure why.  Could it be that the lumbar epidural injection from the 7th of this month is causing it, could it be that my sleeping pill has quit working, or WHAT???  Even before getting sick with Severe Fibromyalgia my body required 8+ hours of sleep.  Since getting Fibro I need 9 to 12 hours of sleep each night.  Normally the steroid from the epidural injections will make me more energetic a few days and I might not sleep well a night or two soon after, but nothing like this.  I feel like a walking zombie.  I can’t even take a nap during the day right now.  Could it be that my sleeping pill (Ambien CR) has quit working, is it the steroids from the epidural injections, or WHAT??  Whatever it is I am so ready to get back to “normal” and get some precious rest.  What are your thoughts?

Tattoo of Love

January 27, 2013

Tattoo of Love

Our middle son, Tyler, surprised me today with a tattoo that he got on his arm. It is the purple fibro ribbon on a cross because he said “through Jesus that he hoped there would be a cure for fibromyalgia someday”. It was so touching – yes, I cried my eyes out. I agree, hopefully through Jesus someday there will be a cure.

Blog of the Year Award

January 24, 2013

2012 Blog Of The Year Award

Posted on January 23, 2013 by Daily Life With Fibromyalgia

I’ve been nominated for the Blog of the Year Award by The Girl in the Yoga Pants.

2012 Blog Of The Year Award

My nominations for this award go to:

http://thegirlinyogapants.com/

http://charliecountryboy.wordpress.com/

http://januarytodecember.com/

http://operationgetinmybelly.wordpress.com/

http://brads40.wordpress.com/

http://faithlovejoyhope.wordpress.com/

The ‘rules’ for this award are simple:

1   Select the blog(s) you think deserve the ‘Blog of the Year 2012’ Award

2   Write a blog post and tell us about the blog(s) you have chosen – there’s no minimum or maximum number of blogs required – and ‘present’ them with their award.

3   Please include a link back to this page ‘Blog of the Year 2012’ Awardhttp://thethoughtpalette.co.uk/our-awards/blog-of-the-year-2012-award/   and include these ‘rules’ in your post (please don’t alter the rules or the badges!)

4   Let the blog(s) you have chosen know that you have given them this award and share the ‘rules’ with them

5   You can now also join our Facebook group – click ‘like’ on this page ‘Blog of the Year 2012’ Award Facebook group and then you can share your blog with an even wider audience

6   As a winner of the award – please add a link back to the blog that presented you with the award – and then proudly display the award on your blog and sidebar … and start collecting stars…

2012 Blog Of The Year Award

Yes – that’s right – there are stars to collect!

Unlike other awards which you can only add to your blog once – this award is different!

When you begin you will receive the ‘1 star’ award – and every time you are given the award by another blog – you can add another star!

There are a total of 6 stars to collect.

Which means that you can check out your favourite blogs – and even if they have already been given the award by someone else – you can still bestow it on them again and help them to reach the maximum 6 stars!

‘Blog of the Year 2012’ Award Badges

Here are the six badges for you to collect – you can either ‘swop’ your badge for the next one each time you are given the award – or even proudly display all six badges if you are lucky enough to be presented with the award six times!

2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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Need to know more? Check out our FAQ page

And Congratulations! on being chosen for the ‘Blog of the Year 2012’ Award

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‘Blog of the Year 2012’ Award – thumbnails

Here are the 6 awards in thumbnail size for your sidebar – feel free to Right Click and save any of the images on this page:

2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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2012 Blog Of The Year Award

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Results of Appt with Neurosurgeon

December 20, 2012

Balneotherapy-and-Back-Pain

I was very impressed with the neurosurgeon.  He took me and my husband to a conference room to view my MRI on big screen and went over it layer by layer.  He said that there are 2 operations that they can do to fix my issues.  The least invasive would be to go in 2 small cuts at the lower back and make room for the nerve that is compressed.  This operation would take care of my sciatic nerve pain, numbness, & tingling.  The other surgery is a bigger surgery and they would go in a larger area to fix the nerve issue AND work to reduce my back pain as well.  BUT FIRST he wanted me to do three months of water therapy concentrating on the back to firm up my core area to see if it helps at all.  He didn’t think it would help much, but he said it was worth a try before doing surgery.  WOW!  A surgeon that has alternatives impresses me.  I really thought when I met with him that he would want to do surgery soon.  So my choices will eventually be to do that first surgery mentioned OR the second surgery that could potentially fix all my issues.  If I am given the choice – I will go for the gold!  Yes, I want to try to fix everything.  Getting rid of some pain and symptoms that come along with it will be wonderful.  Then I can just concentrate on my fibromyalgia and osteoarthritis treatment.  I wish you many days of low pain and extra energy!!

Appt with a NeuroSurgeon

December 7, 2012

sciatic nerve pain

 

As you know I have been having back pain, sciatic nerve pain down both legs, and now I have numbness and tingling down my right leg from the knee to my toes.  My doctor referred me to a NeuroSurgeon to see what we can do.  My appointment is Dec 12th.  Please pray for me!

Life Goes On

November 28, 2012

My husband and I went out to eat last night with friends.  We need to try to do that more often.  It was a blessing and really nice visiting and laughing.  I am also thankful that I had a good morning with low pain.  I was able to be out and about town feeling “normal” for a change.  I have been having a bad time with my fibromyalgia this year and have had more back pain issues as well.  I have had back pain for many years and it is causing me more troublesome symptoms.  I am to the point of needing to think about surgery to see if I can get some relief.  I have Degenerative Disc Disease, Bulging Disc, Bony Spurring, Spinal Stenosis, and Compression of the Sciatica Nerve.  For about a year I have had increasing pain from the pinching of the sciatic nerve.  The pain starts in my lower back, runs down both legs, and into my ankles and feet.  To me it is an intense burning pain that sometimes feels like it is on fire.  For the last few months I have also had numbness and tingling mostly in my right leg and foot.  I continue to do Water Therapy that gives me some relief while I am in the water.  It would be so nice if I had an indoor pool at my house that I could get in and out of all day long. Oh, and while I am dreaming it would also be nice to have a hot tub.  I might turn into a mermaid!  :0)  I am thankful for blessings that God gives me each day.  I pray for pain relief and extra energy for me and my Fibro Friends.

So what’s going on with you?  Do you have fibromyalgia, back issues or sciatic nerve issues?  If so, how do they affect you?

Fatigue Monster

October 5, 2012

The BIG, BAD, Fatigue Monster has me again.  After having injections in my hip I got a virus that made me so sick for 4 days, then the fatigue monster took over and I can’t seem to shake it.  It has been a week since I first got sick with the virus and I am still so fatigued that I can barely get up much less STAY UP all day.  I have been sleeping 12 to 16 hours at a time and then taking a nap during the day as well.  I told my husband that I am so ready to get back to my “normal sick”.  With my chronic illness I am in constant pain and fatigue with numerous other symptoms and when I get an illness on top of that it is almost more than I can take.  I am even ready to get back to my “normal sick”.  I told my husband that it is weird to want to get back to ONLY being chronically ill.  Does that mean that I am ok with it or have accepted being chronically ill??  NO!!!  I still don’t like it one bit and I still haven’t accepted it, but it is what I am used to since I have been chronically ill with Severe Fibromyalgia for over 10 years now.  All I can say is the Fatigue Monster better watch out and go away soon or I will have my friends, family, and my fibro friends kick his butt!!


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