Archive for the ‘Constant Pain’ category

Fibromyalgia is a PAIN!!!

September 18, 2012

This is SO true!!  I haven’t had a second without pain in years.  Constant pain and fatigue is very draining on your body, mind, and soul.  I would give almost anything to have one day without pain and fatigue.  I am praying for a cure or at least medicine that will help me someday.  If you are out there struggling with fibromyalgia or another illness, just know that there are others out here that know what you are experiencing.  We are in this together and we need to encourage one another to live life to the fullest.

Blessings to you and your family.  Please feel free to comment.

I’m a Chronic Illness Warrior!!

September 12, 2012

Living a life of chronic illness can be really draining and it steals a lot of our lives.  I try to stay positive and push myself to do as much as I can.  Somedays my body just feels like staying in bed.  I feel like I have the flu, with fatigue, and severe pain.  I try to get up and do something – ANYTHING – to get out of bed.  I find this gives me a little energy, makes me feel better mentally, and I can help around the house as well.  Sometimes I water my flowers, sometimes “play in my flowerbed”, do a little housework, visit my Mother-in-Law, or have lunch with a friend.  I haven’t been able to get out and shop recently due to my back and hip issues, so I feel a little home bound.  Let’s pray that we all have less pain and extra energy!!  Blessings!

Play Time for this Fibro Girl

August 29, 2012

I was able to play in the backyard today!!  I “played” by adding some mulch to my flower beds and transplanting a few flowers.  When I am able to do this I am as excited as I used to be when it was RECESS time at elementary school.  Wasn’t recess the best!  I can remember the merry-go-round, swings, tether ball, see-saw, etc.  I am so thankful to God for giving me this “play time”.  It let’s me get some exercise, breathe some fresh air, feel good about getting something accomplished, and enjoy watching the dogs chase squirrels.  I need to live where the weather is moderate most of the time with low humidity so it is easier for me to get outside.  In Oklahoma we have ice, snow, and blizzards in the winter with temperatures getting below zero some, in the summer we have temperatures over 100 degrees with humidity so high it is difficult to breathe, we have tornadoes, and now earthquakes.  The cold sets off my fibro giving me more pain, weather fronts give me more pain, and heat and humidity give me more fatigue.  I still have constant pain and fatigue every minute of the day, but the weather has a big effect on my body.

So……. where should I live??

Nap Time!

August 28, 2012

 

I went to my rheumatologist yesterday and my pain level was high.  He gave me a pain shot to help relieve my pain.  It helped but it took it longer than normal.  My wonderful Mother-in-law came over and did housework for me.  Love her so much!  Today my pain has been low and my energy is ok, so I ran a couple of errands that are close to home.  Now it’s time for my daily rest/nap!!

Symptoms of Fibromyalgia

August 21, 2012

I wanted to repost a link that  http://myfibrostory.wordpress.com/ posted.  It is the most complete list of fibromyalgia symptoms that I have ever seen.  Take a couple of minutes to read.  It is well worth it.  The link is:   http://abarnabas.tripod.com/indexfibrosymptoms.html.

Let me know what you think.

Sunshine Award!!

August 10, 2012

I received another award!!  Thanks to Cate of the blog  http://infinitesadnessorhope.wordpress.com for sending a little bit of extra sunshine my way a little while ago.  I haven’t felt well lately so I am a little behind in sending thanks and posting my award.  Thanks again Cate for nominating me for the Sunshine Award.  You brightened my day!  Blessings!

Here are the rules:

1.  If you are nominated, you must blog a post linking back to the person/blog that nominated you.

2. You must answer some questions, nominate ten fellow bloggers and link their blogs to the post!

3. You should comment on your nominees’ blogs to let them know you’ve nominated them.

 

So, here are the questions:

1. Who is your favorite philosopher? 

Sorry, but I don’t have one.

2. What is your favorite number?

I don’t really have one but if I had to pick I would say 3 since I have 3 wonderful boys..

3.   What is your favorite animal? 

That would have to be a dog.  My husband and I have had dogs almost our entire marriage.  Today we have 3 dogs.  They are inside dogs and are a part of our family.  They are all rescued dogs.  We have had Watson for almost 10 years.  He is a mixed breed and is about 65 pounds.  Emily is 12 and a beautiful Cocker Spaniel.  We have had her for about 8 years.  We have had Sam for 6 years and he is a spunky little Schnoodle (Schnauzer/Poodle mix – but looks like a Schnauzer).

4.    What are your Facebook and Twitter URLs? 

Facebook:  https://www.facebook.com/ginger.a.ray AND https://www.facebook.com/ginger.a.ray#!/groups/333111176759048/ is a group that I have that kind of mirrors this blog.

5. What is your favorite time of the day? 

Morning time is my favorite since I feel better in the morning than anytime of the day.

6. What was your favorite vacation? 

The trip we took driving across the US going to the Oregon/Washington area.  We saw some really beautiful country!

7. What is your favorite physical activity? 

Well….. since I have fibromyalgia I have started doing Water Therapy that seems to help with my pain.

8. What is your favorite non-alcoholic drink?

Water!!

9. What is your favorite flower?

I have ALWAYS loved carnations.

10. What is your passion? 

My family has always been my passion.

 

My ’10′ Blogger Nominees

1.  http://csgomez79.wordpress.com/

2.  http://auredhead.wordpress.com/

3.  http://notsotalltales.wordpress.com/

4.  http://youngfibro.wordpress.com/

5.  http://laurensstoryhere.wordpress.com/

6.  http://beckami.wordpress.com/

7.  http://walkingthroughpain.wordpress.com/

8.  http://couchedfibromum.wordpress.com/

9.  http://chronictraveler.wordpress.com/

10.  http://chronickatie.com/author/cakeykatie/

Congratulations and enjoy the little bit of extra Sunshine sent your way today!

Sisterhood of the World Bloggers Award!

August 10, 2012

I am so honored to be nominated by two bloggers for for the Sisterhood of the World Bloggers Award!!  Thanks to Kimberly L. Basinger-Coker of the blog  http://makingthejourneyhome.wordpress.com/ AND http://fogandshadows.com/ for nominating me.  This award was inspired by the Sisterhood of Traveling pants and is an award for female bloggers to encourage the spirit of sisterhood.  This means a lot to me and again I say thanks.

Here are the rules:

1. Thank the giver

2. Post seven things about yourself

3. Pass the award on to seven other bloggers and inform them that they have been nominated

4. Include the logo of the award on a post in your blog.

Seven Things About Me:

1.  I am a believer, I love God, and I look forward to spending eternity in His presence.

2.  I married my high school sweetheart, Joe.  We were 18 years old and “head over hills in love”.

3.  My husband and I have been married 32 years and are still “head over hills in love”!!

4.  God blessed us with 3 wonderful sons.

5.  I have Severe Fibromyalgia and really miss my old life.

6.  My Fibro was so bad at one time that I spent 2 entire years in bed with extreme pain and fatigue.

7.  I am “trying” to learn to live my new life to the fullest – sometimes it is very difficult.

Seven Deserving Blogs

1.  http://barefootmeds.wordpress.com/

2.  http://thelaughinghousewife.wordpress.com/

3.  http://myeverlastingcompanion.wordpress.com/

4.  http://staciegh.wordpress.com/

5.  http://youngfibro.wordpress.com/

6.  http://halfwaybetweenthegutter.wordpress.com/about-the-author/

7.  http://25pillsaday.wordpress.com/

Congratulations!!

Yes, I’m a Redneck

August 9, 2012

I had a terrible time with my back and fibro Tuesday night and Wednesday.  Once I have an Epidural Injection it feels better that day then inflammation sets in at the site about a day or so after and it causes extreme pain. The doctor told me the first time he gave me the epidural injection that with my fibro it was going to traumatize the site and it would last about a day.  He knew what he was talking about.  This is a normal thing for people with fibro.  If I stub my toe, hit my knee on something, fall, etc. it causes the pain to radiate from the site of the injury throughout my body.

Today my back pain is low and I enjoyed the morning outside watering and playing in my flower beds.  🙂   I praise God for each and every “good” day that I have.  My fatigue is better, but I always have to rest in the afternoon.  A “good” day for me is normally light housework, errands, or occasionally shopping in the morning, resting/sleeping in the afternoon, spending time with my family in the evening, and early to bed.

Oh, I learned something new this week.  A nurse asked me if I had an autoimmune disease and I told her “Yes, I have fibromyalgia”.  She said that she could tell by the redness on my neck (Yes, I’m a Redneck).   I told her that my dermatologist said it was Rosacea and I didn’t realize that it was related to my fibro.  Here is a link with information:  http://fatigue-cfs.com/Fibromyalgia/Rosacea-Fibromyalgia.html

So, I  am curious….. for those of you that have Fibromyalgia/Lupus do you also have Rosacea?

Epidural Injection for Back Issues

August 7, 2012

Yesterday I had my 4th Lumbar Epidural Injection for my lower back pain.  I have had back pain for years but just thought it was part of my FIBRO.  My rheumatologist sent me a few months ago to have an MRI on my lower back and I find out I have:

-Degerative Disc & Facet Disease (especially L4 & L5)

-Protruding Disc with Bony Spirring

-Stenosis in L4 & L5 with Displacement and Compression of the Exiting Left L4 Nerve Root

Well….. isn’t that nice?  I say that sarcastically, but it is nIcE in a sTrAnGe way.  I had my series of 3 epidural injections with the last one in May.  I had SIGNIFICANT relief in one week!!  So I was able to get rid of some of my pain and at least the back pain has nothing to do with my severe fibromyalgia.  I was given steroid, short-term pain medicine, and long-term pain medicine.  They never know how long this will help an individual, but I have talked to a few that have gotten relief for 3 to 5 years.  My pain returned after 3 months, but it was a GLORIOUS 3 months with little back pain!  I was told that some patients may have to go every 3 months since the medication works differently in each patient.  The anesthesiologist told me that since I am back within the 3 months that it meant that I was getting most of my pain relief from the steroid.  He told me that I would be a good candidate for back surgery by reviewing my issues and that it could potentially help my issues for long-term.  I am not excited in the least about the possibility of having back surgery, but it would be so nice to FINALLY be able to “FIX” something.  I have found with Fibromyalgia there is not much that you can “FIX”.  I hear that there is research being done that could one day be able to help fibro patients and I welcome the day.  There are medicines that help some people with fibro, there are some people who have a touch of fibro, and there are people like me that take medicine that helps a wee bit but still suffer from constant pain.  So with all the stuff that I have going on with my lower back is kind of a “good thing”, because it is something that can be “FIXED”.

Isn’t it weird how perspective can change depending on how you are affected and the pain that you endure daily? 

So Fatigued I Can’t Open My Eyes

July 30, 2012

WHAT??  You can even open your eyes?  Sounds ridiculous doesn’t it?  Well…. yesterday was one of those days.  I started the day with lots of pain.  Pain in my hips, legs, shoulders, and hands.  I was in so much pain that I decided to take a pain pill.  It took longer for the pain pill to kick in but once it did it reduced my pain significantly.  I don’t know about you, but pain pills give me a spurt of energy – the type of energy that you just have to get up and do something.  When my spurt of energy started I decided to clean up my closet.  I took it easy but was able to make it look so nice.  Then the spurt of energy was gone.  Not only was it gone, but now EXTREME Fatigue kicked in.  When this happens I just have to go to bed.  I was in bed for the rest of the day and night.  I slept all night, but during the day yesterday I just napped off and on.  The fatigue was the extreme kind that I get periodically and I don’t even have the energy to open my eyes.  I had the tv on for some noise, but I could only lay with my eyes closed plastered to the bed.  I did some tossing and turning to try to stay comfortable since some of the pain returned as well.  It was the kind of fatigue if you have ever had it you know what I mean….. it was all I could do to breathe.  My sweet husband would come in to check on me periodically and I could hear him sneak in to not wake me.  I would say “I’m awake Sweetie, I am just still too tired to open my eyes”.  We would talk for a couple of minutes and then he would go on so I could rest.  I am still pretty fatigued today, but able to at least be up and actually HAVE MY EYES OPEN! 


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