Archive for the ‘Chronic Fatigue’ category

I’m BACK!!!

April 10, 2013

frog jumping

I haven’t been on in a while.  To make a long story short.  I have had a lot of fibro pain and fatigue to the point of having in bed days.  Our middle son, who is 21, got both hands burned at work when a torch exploded.  It was a large fireball that singed his hair, eyebrows, eyelashes, nose hairs, BUT God spared his face.  The only thing burned was his hands.  I have never been around anyone that had been burned and it was horrible.  Even with pain pills he was in so much pain.  We had to put creams on and wrap his hands multiple times each day.  The entire family pitched in to help feed him, doctor his hands, give him drinks, and even give him sponge baths out of the kitchen sink.  It totally broke my heart.  The good thing is we have one of the best burn hospitals within 30 minutes of our home and he had a wonderful doctor.  We took him for treatment weekly and he was burned so bad that he had to have a skin graft to one hand and it is doing wonderful.  He is back to work, pain-free, and they say he will have a complete recovery.  Praise God!  I am glad to be back with my friends and look forward to hearing from you and reading your posts.

On another note – our weather has been crazy lately with numerous storms, weather fronts, etc.  Yesterday it was 80 degrees and then last night it got down to 30 degrees.  Talk about crazy!  No wonder I have been hurting so much.  Yesterday I picked some asparagus, admired my flowers coming up, saw zillions of blooms on my strawberries, and noticed the peach tree was full of blooms.  Today my peach tree has ice on the limbs and it looks sad with it limbs under the stress of the rain that froze on it.  Last night we put trash bags around my patio banana, lemon, lime, and orange trees.  We put buckets, tubs, pails, anything we could find to cover as much as we could to try to save it from the cold air.  The ground is wet and it is supposed to be 28 degrees tonight and then after that I think it will go back to our normal April weather.  It is so weird to get a winter storm in April here in Oklahoma.

Blessings to you!

Precious Sleep

January 30, 2013

I feel rested and so much better.  I slept 8 hours last night and 5 the night before.  Hopefully I am getting back to my “normal” sleep pattern.  Even though the weather change has me achy today it is much better to handle with enough sleep.  I wish you a blessed day!!

Where Did my Sleep Go?

January 28, 2013

zombie

 

I have only been sleeping 3 to 4 hours a night for the last week and not sure why.  Could it be that the lumbar epidural injection from the 7th of this month is causing it, could it be that my sleeping pill has quit working, or WHAT???  Even before getting sick with Severe Fibromyalgia my body required 8+ hours of sleep.  Since getting Fibro I need 9 to 12 hours of sleep each night.  Normally the steroid from the epidural injections will make me more energetic a few days and I might not sleep well a night or two soon after, but nothing like this.  I feel like a walking zombie.  I can’t even take a nap during the day right now.  Could it be that my sleeping pill (Ambien CR) has quit working, is it the steroids from the epidural injections, or WHAT??  Whatever it is I am so ready to get back to “normal” and get some precious rest.  What are your thoughts?

Appt with a NeuroSurgeon

December 7, 2012

sciatic nerve pain

 

As you know I have been having back pain, sciatic nerve pain down both legs, and now I have numbness and tingling down my right leg from the knee to my toes.  My doctor referred me to a NeuroSurgeon to see what we can do.  My appointment is Dec 12th.  Please pray for me!

Frequent Nausea??

November 1, 2012

I am having a “fatigue monster” kind of day.  It is noon and I am just able to crawl out of bed.  My body started hurting so much that I had to get up for a while.  I am also sick to my stomach so I am making rice to eat for lunch.  My son, Tyler, brought me breakfast in bed this morning so I could take my medicine (Carnation Instant Breakfast was all I could get down) .  I have nausea frequently does anyone else have this problem?

Fatigue Monster

October 5, 2012

The BIG, BAD, Fatigue Monster has me again.  After having injections in my hip I got a virus that made me so sick for 4 days, then the fatigue monster took over and I can’t seem to shake it.  It has been a week since I first got sick with the virus and I am still so fatigued that I can barely get up much less STAY UP all day.  I have been sleeping 12 to 16 hours at a time and then taking a nap during the day as well.  I told my husband that I am so ready to get back to my “normal sick”.  With my chronic illness I am in constant pain and fatigue with numerous other symptoms and when I get an illness on top of that it is almost more than I can take.  I am even ready to get back to my “normal sick”.  I told my husband that it is weird to want to get back to ONLY being chronically ill.  Does that mean that I am ok with it or have accepted being chronically ill??  NO!!!  I still don’t like it one bit and I still haven’t accepted it, but it is what I am used to since I have been chronically ill with Severe Fibromyalgia for over 10 years now.  All I can say is the Fatigue Monster better watch out and go away soon or I will have my friends, family, and my fibro friends kick his butt!!

Steroid Shots for Pain

September 30, 2012

I had steroid shots placed in the bursa area of my hip on Thursday to see if it would help with my hip pain.  I had developed pain with walking and it felt like it was bone on bone.  X-rays showed that my hip was ok.  The specialist put multiple steroid injections around the area of pain.  I could tell by the next day that it was helping, which was wonderful!!!  The drawbacks or side-effects of the shots were:  I was so wide awake that I only slept a total of 3 hours for 2 nights straight, my Fibro fog increased, the site was fairly swollen, bruised and painful, and it caused my Fibro to flare this weekend.  The GOOD news again is that it reduced the pain in my hip area so I no longer have the terrible pain when walking.  It is sad that so many things start flares in people with Fibromyalgia (meaning that their Fibro symptoms get worse).  Even treatment like steroid shots to help with hip pain start flares that make your Fibro worse.  I am thankful for any help I can get to reduce pain or increase energy, even at the cost of going through a Fibro Flare.  I don’t always…… but I want to try to look at the positives in my life.  May you be pain-free and have extra energy!

Shots!! Make the Pain Go Away…… PLEASE!!

September 28, 2012

I have been having so much back pain and hip pain that I have been getting Lumbar Epidural Injections and today I was sent to see an Orthopaedic Surgeon.  He ended up giving me a steroid shot in my bursitis area in my left hip.  He says that my left hip is covered in arthritis, bone spurs, pinching the nerve that causes my sciatica nerve issues.  My bruise is lovely that I got today.  The steroid shot  helped me so much by noon that I was doing little projects that I haven’t been able to do (just light work).  THEN, I went outside to get the mail and the grass was wet.  When I came back in I walked across our living room carpet in my tennis shoes, then onto the tile in the kitchen.  I made it by the refrigerator and fell so hard on my right knee and my left hip.  I pulled the area that had been hurting so much before the steroid shot in my hip.   AARRGG.  I was so upset that I called my husband to come home early to be with me.  I was in the floor crying, I was pissed, in pain, frustrated because every time it seems I get better I get knocked down with pain or fatigue in some way.  Right now I am pretty sick of this Fibro thing, the hip issue, and the back issue.  Someone make it go away!!!  They say that I will eventually need back surgery.  I won’t get pain relief from the sciatic nerve until I have the back surgery.  The nerve is being pinched so badly that all it knows to do is PAIN.  I also have the bulging disc, lots of arthritis, degenerative spurring, ventral flattening of the thecal sac, degenerative changes are most prominent at L4-L5 where there is a broad posterior and left foraminal disc protrusion with bony spurring.  There is moderate to severe left foraminal stenosis at L4-L5 with displacement and compression fo the exiting left L4 nerve root.  So……. sometime in the future I will be having back surgery.  They say this is the only thing that will help relieve my back and sciatica nerve pain.  I think I will try the shots for a while and when I just can’t stand it anymore – I wll schedule the surgery. 

So tell me – have you taken pain pills, pain shots, epidural injections for pain, steroid shots?  Tell me your experience I would love to hear it.

My Faithful Friend – Emily

September 24, 2012

This is our Cocker Spaniel, Emily.  She is 13 years old and we have had her for 8 years.  Emily is a rescue dog.  We had a dog, Watson, at the time and thought he needed someone to play with besides our family.  I found a Cocker Spaniel on line at a place called Pets and People that rescued dogs for placement in good homes.  The Cocker Spaniel was a male named Suds, so I went after work the next day to get him.  He was out for grooming that day so I was starting to leave and return the next day when the lady said “We just received another Cocker Spaniel yesterday… would you like to take a look at her?”.  I said sure since I didn’t care of the sex of the dog, but I really wanted another Cocker Spaniel.  We had a Cocker Spaniel years before and she was an angel.  The lady brough the dog out and she was the UGLIEST dog I had ever seen.  They had just picked her up off the streets of a neighboring town and she was so malnourished that most of her hair had fallen out.  What hair she had left was long, stringy strands of bright red hair.  She was so skinny you could see her complete bone structure of her back, ribs, etc.  I was surprised the dog was standing.  They had to of seen the surprise on my face, but asked “Would you like to take her for a walk?”  I agreed and when I took hold of the leash the ugly, malnourished Cocker Spaniel held her head high and walked like she was royalty.  We walked down the pathway and I stopped and petted her for a few minutes and noticed she had the prettiest, brown eyes I had ever seen.  We instantly fell in love with each other and she became my best friend.  When we went back in I said “I want her!”  On the way home I put her in the front passengers seat on a nice, soft towel.  About 5 minutes into a 40 minute drive home she moved over right up against me and laid her head on my shoulder.  When we got home I gave her a bath and she was right at home.  My husband and our boys looked at her with the same shock that I did when I first saw her, but they fell in love with her as well.  We fattened her up in no time, her hair grew back more of a blondish red and she has been princess in our house ever since.  She takes every step that I take and when I am sick she stays in my bedroom the entire time.  I was in bed for 2 years at one time and Emily stayed with me only going out when my husband or boys took her outside to go to the bathroom.  She is my FAITHFUL FRIEND.

Fibromyalgia is a PAIN!!!

September 18, 2012

This is SO true!!  I haven’t had a second without pain in years.  Constant pain and fatigue is very draining on your body, mind, and soul.  I would give almost anything to have one day without pain and fatigue.  I am praying for a cure or at least medicine that will help me someday.  If you are out there struggling with fibromyalgia or another illness, just know that there are others out here that know what you are experiencing.  We are in this together and we need to encourage one another to live life to the fullest.

Blessings to you and your family.  Please feel free to comment.


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