Welcome to my new blog. This is my story.

I have Severe Fibromyalgia which causes me constant pain and fatigue among many other symptoms. I have had Fibromyalgia for many years but just didn’t know what it was. At first it started with aches and pain that others didn’t seem to have at my age of around 30 years old. By 40 the fatigue and pain increased and since a doctor brushed it off a few years prior with “You work full-time and have a husband and 3 children – you should be tired and have pain”, I thought that since I had turned the BIG 4-0 that MAYBE this was to be expected. Then it quickly became apparent that this was more than turning 40 so I started with my doctor. It wasn’t long that I made an appointment with an internal medicine doctor that sent me on to a Rheumatologist. The Rheumatologist diagnosed me with SEVERE Fibromyalgia since my pain and fatigue was so great. Over the next two years I tired numerous medications with little to no help with the fatigue and pain. I had a career in financial institutions and had worked with my current employer for almost 20 years. I had worked my way up to management and enjoyed my career. By age 44 my fibromyalgia had become so severe that I was using a sleeping bag and pillow at work to rest in the morning before work, at lunch, and during the day as needed. I had an office that I could close my door and blinds and my boss and employees were understanding and knew that I was very ill. I could no longer drive myself to work or do anything at home. My husband and boys took over all housework and all I could do was get up, take a shower, sleep/rest as my husband drove me to work, use my sleeping bag and pillow as needed during the day, sleep/rest as my husband drove me home, and crawl into bed for the night. When I was 45 my Rheumatologist told me I could no longer work and gave me the dreaded note of “Ginger will no longer be able to work even for the foreseeable future. I spent 2 years in bed only getting up to go to the bathroom and take a shower. My husband would bring my meals to bed because I was so weak and it was difficult for me to stay up long. I was nauseated most of the time so I mostly ate hot cereal (The only thing besides bread and cheese that I normally ate). I have continued to see my Rhumatologist every 3 months or as needed. I also have developed osteoarthritis that makes my joints painful in addition to the pain of fibromyalgia. I have tried numerous medications and currently taking Lyrica that seems to give me a little relief along with other medications. I am now able to do light housework, get out of the house a little, and spend time with my family. I have learned that I have to conserve my energy and my main “job” is taking care of my health. Daily life with fibromyalgia is very difficult but livable. I hope you enjoy my blog.


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