Fibromyalgia Pain


I have constant pain from fibromyalgia.  Life with constant pain causes many emotions, thoughts, and trials.  I have been in constant pain for over 10 years now.  I have thought before that I would give almost anything to have just one day without pain….. no, I would even take just one hour without pain….. I would even settle for just ONE MINUTE without pain.  Pain is a terrible thing to deal with every second of the day.  I try to do many things to help my pain and to try to take my mind off of the pain.  Some of these are writing a blog, connecting with distant relatives on facebook, water therapy, working in my flower bed, going on an occassional lunch date with a friend, etc.  I miss the person that I used to be.  The Ginger without pain.  I was without pain and didn’t have to think about pain.  I am a different person now.  Sometimes when you see me I may not look like I am hurting, but the pain is there eating away at me.  Just like others with chronic pain, I am pretty good at hiding it and putting a smile on my face, but the monster “PAIN” is still there.  Sometimes it is so great that I have to go to bed or I have to take a pain pill.  I don’t like taking pain pills.  I don’t want to get hooked on pain pills or get to the point that they no longer work for me.  When I take them they only take the edge off of the pain, but it makes it more bearable for me tolerate.  My pain now never gets below a 3 and goes to a 10.  How nice it would be to even get to 1 or 2 on the pain scale.  Hopefully there will be something to help me down the road.  (By the way when I talk about the pain scale – I had to revise mine a few years ago because my pain would go to a 15.  I no longer have pain less than an 8 on my old pain scale – which is now a 3 on my new pain scale.)  I hope and pray for relief from my new life – the one of  constant pain.  The thing I concentrate on is living my life to the fullest.

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4 Comments on “Fibromyalgia Pain”

  1. NZ Cate Says:

    That makes so much sense Ginger and sometimes I wish I had a big sign on me that says “I am in pain” for those who need to be made aware. 🙂 It would probably be ignored anyway but it’s a nice idea.

  2. Ali Says:

    II have been on tramadol for 10+ years. Because it is not enough I often take Aleve also. I am not on the maximum dose of tramadol, but the doctors make me feel like I should not be asking for more. I do not like the pain scale that the doctors use. For someone with fibromyalgia I do not feel it really addresses the pain. I want them to ask me if my pain is adequately controlled not just what it is the moment I am in the doctors office. If I am able to smile, people mistake that for feeling better. After 10 years, sometimes the lack of understanding angers me. The doctors want me to exercise which in theory sounds good, but some days it hurts just to put my shirt on. I don’t even do the things I used to love, much less doing something that will hurt as I do it.

    Ginger, I am there with you. I wish you well.

    • Ginger Ray Says:

      I hear you! Yes, I smile and you are not able to tell that I am hurting so bad that I want to go to bed, but I try to stay up to have a better quality of life. Maybe someday we will have a cure or at least better medicine to help us with the horrible pain. I am here with you as well.


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