Archive for May 2012

Fibromyalgia Awareness Day 2012

May 12, 2012

Today is Fibromyalgia Awareness Day 2012 – wear purple in support.  This is not something that I am excited to do, looking forward to, wanting to do all of my life….. but it is a day to say I AM ONE OF MANY THAT HAVE FIBROMYALGIA AND WE NEED A CURE!  Fibro not only takes over your life, but it takes over the lives of your family and close friends.  It is something that has been difficult for me and my doctors to help me get much relief from the pain, fatigue, and many other symptoms.  It took from me precious time with my family, it took my career, it took half of our family’s income, it took my health, it took my total independence, it took a lot of my happiness at times….. but it is not who I am, it is an illness that I have and I try each day to take back more of my own life.  I am spending today with my husband and 3 boys and I intend to enjoy the entire day and try to live life to the fullest!!

I wish for you today a low pain day and extra energy! 

My Fibromyalgia Story updated due to FIBRO FOG

May 11, 2012

Well, this morning I was rereading my blog from yesterday and realized I had left out some KEY people in helping over the years as I have struggled in living with Severe Fibromyalgia.  This is due to Fibro Fog that clouds my mind and doesn’t let the necessary connections be made so I can think clearly, be able to complete sentences when I am talking, or remember even half of my past.  I will do a blog soon on Fibro Fog and talk indepth about it.

My mother-in-law, Nina, has helped with everything from activities with the boys or anything they wanted to do (including playing baseball with her in the backyard), cleaning my house, cooking us meals, etc.  She lives only a minute away and has been here in a minutes notice when I have needed her.  She helped us raise the boys when I was still able to work, she took them to spend the night with her on Friday nights to give me and my husband some quiet time, she has been a good friend that they can talk to about anything, and even though two of the boys are away at college they still have traditions that they continue to do with her.  To mention only a couple – One is spending the night with her on New Year’s Eve, staying up, and celebrating.  They still like to go and watch ball games with her at her house, and visit with her when they come home.  They have been doing these traditions since they were very little and enjoy time with her.  My mother-in-law has been a BIG part of our family throughout the years.  She is at an age that I should be taking care of her, although she is still very healthy and even still walks 2 miles a day.  So… with my illness she takes care of our family as needed.  Yesterday she came over and swept & mopped my kitchen floor!  She helps my husband and boys do the things that I am no longer able to do.  Praise God for her!

My parents, brothers, family, and friends have prayed for me throughout this ordeal.  They live about 4 hours away so they can’t just drive over when needed.  I am thankful for being able to talk to them on the phone to get comfort and for their continued prayers.

Our 3 boys stepped up to the plate to take care of whatever needed to be done (shopping, cooking, cleaning, etc)  We have always been very close and it was difficult when they started missing more and more time with me because I was in bed too fatigued to get up,  When I was awake they would come in my room to talk and be with me as much as they could.  At my worst we had one child, Kyle, living out of the home and two at home.  Kyle would come over and help us as needed.  Our middle son, Tyler, used to come home from school at lunch when he was 15 – 17 to make and bring me lunch to my bed, offer to do anything that I needed, kept me company, and also would tell me jokes or do/say something that would make me laugh.  He and our youngest son, Ryan, would come home after school to be with me and help around the house instead of going out with friends.  This is something I will forever be grateful for.  All three of them have grown into nice, kind-hearted young men.

Thanks for reading my blog and if you have Fibromyalgia may you have a low pain day with extra energy! 

My Fibromyalgia Story

May 10, 2012

Welcome to my new blog.  This is my story.

I have Severe Fibromyalgia which causes me constant pain and fatigue among many other symptoms.  I have had Fibromyalgia for many years but just didn’t know what it was.  At first it started with aches and pain that others didn’t seem to have at my age of around 30 years old.  By 40 the fatigue and pain increased and since a doctor brushed it off a few years prior with “You work full-time and have a husband and 3 children – you should be tired and have pain”, I thought that since I had turned the BIG 4-0 that MAYBE this was to be expected.  Then it quickly became apparent that this was more than turning 40 so I started with my doctor.  It wasn’t long that I made an appointment with an internal medicine doctor that sent me on to a Rheumatologist.  The Rheumatologist diagnosed me with SEVERE Fibromyalgia since my pain and fatigue was so great.  Over the next two years I tried numerous medications with little to no help with the fatigue and pain.  I had a career in financial institutions and had worked with my current employer for almost 20 years.  I had worked my way up to management and enjoyed my career.  By age 44 my fibromyalgia had become so severe that I was using a sleeping bag and pillow at work to rest in the morning before work, at lunch, and during the day as needed.  I had an office that I could close my door and blinds and my boss and employees were understanding and knew that I was very ill.  I could no longer drive myself to work or do anything at home.  My husband and boys took over all housework and all I could do was get up, take a shower, sleep/rest as my husband drove me to work, use my sleeping bag and pillow as needed during the day, sleep/rest as my husband drove me home, and crawl into bed for the night.  When I was 45 my Rheumatologist told me I could no longer work and gave me the dreaded note of “Ginger will no longer be able to work even for the forseeable future”.  I spent 2 years in bed only getting up to go to the bathroom and take a shower.  My husband or children would bring my meals to my bed because I was so weak and it was difficult for me to stay up long.  I was nauseated most of the time so I mostly ate hot cereal (The only thing besides bread and cheese that I normally ate). I have continued to see my Rheumatologist every 3 months or as needed.  I also have developed osteoarthritis that makes my joints painful in addition to the pain of fibromyalgia.  I have tried numerous medications and currently taking Lyrica that seems to give me a little relief along with other medications.  I am now able to do light housework, get out of the house a little, and spend time with my family.  I have learned that I have to conserve my energy and my main “job” is taking care of my health.  Daily life with fibromyalgia is very difficult but livable.  I hope you enjoy my blog.

Hello world!

May 10, 2012

I have been wanting to start a blog to help others with Fibromyalgia or someone with a family member/friend with Fibromyalgia.  It has been a hard road for me and I want to help others in dealing with Fibromyalgia.


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